I have had Crohn's Disease for 40ish years. Not diagnosed early enough. Went to Cleveland Clinic and had 5 surgeries there. They removed my colon and put me on steroids (ACTH by injection for a few years, then prednisone) and azathioprine. Had an ileostomy for 6 months which was then reversed.
I have been dealing with this but have found ways to make myself comfortable. I have found that it does not encompass my life as it did at first and I just seek out every bathroom when I go to a restaurant, mall, etc.
The only major problem is that because of the prednisone since 1975 and other meds, I have developed other problems. But I deal with them.
I am only sad that I wasn't as smart as I am today and would not have been taking prednisone all these years. But too late, so my advice to all of you is to find an alternative.
Thanks for listening and I am happy to answer any questions.
I have been dealing with this but have found ways to make myself comfortable. I have found that it does not encompass my life as it did at first and I just seek out every bathroom when I go to a restaurant, mall, etc.
The only major problem is that because of the prednisone since 1975 and other meds, I have developed other problems. But I deal with them.
I am only sad that I wasn't as smart as I am today and would not have been taking prednisone all these years. But too late, so my advice to all of you is to find an alternative.
Thanks for listening and I am happy to answer any questions.