Hi everyone,
I am new to this forum but was diagnosed with Crohns 24 years ago. I was put on Azathioprine . I experienced a flare shortly after giving birth to my son in 1992 which was sorted with Prednisolone and was in remission until I had to have emergency surgery for a bowel obstruction in 1999 (spent Christmas day in a Morphine stupor) and had a resection at the terminal ileum.. Spent 11 days in hospital which was horrendously painful.
Tried various meds over the years, which I could not tolerate, apart from Azathioprine. Had to have gall bladder removal the year after my surgery which is a complication of Crohns.
Over the years I have had a few flares which normally resolved with a course of Prednisolone but suddenly around 4 years ago I ended up in hospital on an IV for a bad flare with symptoms of severe diarrhoea and bleeding, but bizarrely no pain! Unfortunately I developed a reaction to the Prednisolone this time and had to come off it (subsequent flares have been treated with Budesonide). Following that I then got started on Humira fortnightly injections which worked fantastically but unfortunately got taken off them after a year following a normal colonoscopy.
The following year I had to be taken off the Azathioprine as I had several lesions removed, one of which was cancerous! (Still under Dermatology and have had to have several lesions frozen off for early cancer! I had another flare earlier this year so got put back on the humira again, but unfortunately it has not worked like last time.. I am now experiencing another flare while on Humira. Could not get a hospital apt for another 2 weeks so have been started on Budesonide in the meantime. The weird thing is that I have now gone from up to 12 mucus/bloody toilet trips daily suddenly down to not being able to go.. I now have not had a bowel movement for 24 hours, which has never happened even when on high dose Prednisolone.. I do not have a fever but feel so weak and tired. I am only getting occasional stomach cramps.
This is all new to me as is not following previous flare patterns.
Has anyone had similar symptoms? Was thinking stricture but not been sick or experienced excruciating pain (though have been on Tramadol for severe back pain which is also associated to the Crohns.. I am also under a Rheumatologist for joint pain).. Unfortunately the Gastro dept at the Hospital are so understaffed appointments are like gold dust. My GP asked for me to be seen urgently but have had to wait 4 weeks! Nearly ended up at A&E but Budesonide has slightly helped with the nausea..
Has anyone had similar symptoms, I know everyone is different as my blood work has always come back nearly normal even in a flare, it was only colonoscopy that found it..
:confused2:
I am new to this forum but was diagnosed with Crohns 24 years ago. I was put on Azathioprine . I experienced a flare shortly after giving birth to my son in 1992 which was sorted with Prednisolone and was in remission until I had to have emergency surgery for a bowel obstruction in 1999 (spent Christmas day in a Morphine stupor) and had a resection at the terminal ileum.. Spent 11 days in hospital which was horrendously painful.
Tried various meds over the years, which I could not tolerate, apart from Azathioprine. Had to have gall bladder removal the year after my surgery which is a complication of Crohns.
Over the years I have had a few flares which normally resolved with a course of Prednisolone but suddenly around 4 years ago I ended up in hospital on an IV for a bad flare with symptoms of severe diarrhoea and bleeding, but bizarrely no pain! Unfortunately I developed a reaction to the Prednisolone this time and had to come off it (subsequent flares have been treated with Budesonide). Following that I then got started on Humira fortnightly injections which worked fantastically but unfortunately got taken off them after a year following a normal colonoscopy.
The following year I had to be taken off the Azathioprine as I had several lesions removed, one of which was cancerous! (Still under Dermatology and have had to have several lesions frozen off for early cancer! I had another flare earlier this year so got put back on the humira again, but unfortunately it has not worked like last time.. I am now experiencing another flare while on Humira. Could not get a hospital apt for another 2 weeks so have been started on Budesonide in the meantime. The weird thing is that I have now gone from up to 12 mucus/bloody toilet trips daily suddenly down to not being able to go.. I now have not had a bowel movement for 24 hours, which has never happened even when on high dose Prednisolone.. I do not have a fever but feel so weak and tired. I am only getting occasional stomach cramps.
This is all new to me as is not following previous flare patterns.
Has anyone had similar symptoms? Was thinking stricture but not been sick or experienced excruciating pain (though have been on Tramadol for severe back pain which is also associated to the Crohns.. I am also under a Rheumatologist for joint pain).. Unfortunately the Gastro dept at the Hospital are so understaffed appointments are like gold dust. My GP asked for me to be seen urgently but have had to wait 4 weeks! Nearly ended up at A&E but Budesonide has slightly helped with the nausea..
Has anyone had similar symptoms, I know everyone is different as my blood work has always come back nearly normal even in a flare, it was only colonoscopy that found it..
:confused2:
