Hello, I would like some advice from people who have more experience with Crohns. I was diagnosed with Crohns 2 years ago. They said it started with a case of C-Diff. The first 2 months I had C-Diff I lost 20lbs of muscle. Going from 170lbs to 150lbs. This past summer I was able to only put 7lbs back on up to 157lbs but recently lost 4lbs back to 153lbs (as I work in an elementary school so I am often fighting colds) After 2 years i have only put on a few pounds.
History Diet etc:
2. I was on Infliximab for 1 year but have been off of it for 7 months as I did not feel it was helping. The Dr. told me I would be able to eat whatever I wanted to when on infliximab but my diet did not improve.
3. My Crohns symptoms include cramps pain with digestion that is quiet painful. (Ulcerations in small bowel) Thankfully I do not get diarrhea unless I catch the flu. I tend to be more on the constipated side. If I don't follow my diet I get really bad cramps pain....
4. I have to avoid sugar, dairy processed foods.
5. Treatment: I have been surviving on something called the Karen Hurd Bean Protocol. It has saved me but I still cannot put weight back on. I am also on a few
supplements meant to aid digestion. THey are: Standard Process: Okra Pepsin E3 and Gastrex Plus: Alovea Immun.
*If I stick to this regimen I can stay out of pain but cannot put on weight......
Questions:
1. Is this my new weight and I simply cannot put weight back on due my body changing from Crohns? My diet is limited to eggs, chicken, fish, brocolli, black beans, chex cereal, sometimes potatoes, white bread. *It has taken me a long time to establish this diet. Surprisingly it matched up very well with Karen Hurds
Bean Protocol so I have stuck with it for over a year with good results reducing or stopping all pain.
2. Has anyone lost weight with Crohns and then put it back on? Should I be trying other meds similar to infliximab to put weight back on?
Thanks for your time!
History Diet etc:
2. I was on Infliximab for 1 year but have been off of it for 7 months as I did not feel it was helping. The Dr. told me I would be able to eat whatever I wanted to when on infliximab but my diet did not improve.
3. My Crohns symptoms include cramps pain with digestion that is quiet painful. (Ulcerations in small bowel) Thankfully I do not get diarrhea unless I catch the flu. I tend to be more on the constipated side. If I don't follow my diet I get really bad cramps pain....
4. I have to avoid sugar, dairy processed foods.
5. Treatment: I have been surviving on something called the Karen Hurd Bean Protocol. It has saved me but I still cannot put weight back on. I am also on a few
supplements meant to aid digestion. THey are: Standard Process: Okra Pepsin E3 and Gastrex Plus: Alovea Immun.
*If I stick to this regimen I can stay out of pain but cannot put on weight......
Questions:
1. Is this my new weight and I simply cannot put weight back on due my body changing from Crohns? My diet is limited to eggs, chicken, fish, brocolli, black beans, chex cereal, sometimes potatoes, white bread. *It has taken me a long time to establish this diet. Surprisingly it matched up very well with Karen Hurds
Bean Protocol so I have stuck with it for over a year with good results reducing or stopping all pain.
2. Has anyone lost weight with Crohns and then put it back on? Should I be trying other meds similar to infliximab to put weight back on?
Thanks for your time!