Hi,
I am a newbie I have had Crohn's disease since 1983 no operations thank god, currently taking pentasa 2mg, B12 injections and vitamin D injections and scandishakes, hate them.
My 18 year old son was diagnosed last Thursday, I had to fight to get referred as GP believe it was an viral infection Jan 2014 took my son to GP 20 times keep asking please check for Crohns but she did nothing, until on 28th Jan 2014, I went to GP and threaten her with media coverage for neglect for my son, who also has cerebral palsy, she finally referred him and he was fast track, appointment came and saw a specialists in Feb 2014 and they tests started quickly, on Thursday las week he had MRI, colonoscopy, endoscopy, gastroscope
all in one way he was completely sedated for these, anywhere he woke up and vomited once it was quiet a lot, however I said this is due to all the meds you have given him, he told me that my son large intestine was inflamed and the crohns was acute, he then said that if the meds don't work he would need an operation ASAP and the chances of survival was 10% because he is so poorly and underweight. I was shocked surely the medication is there to control the inflammation even if it is acute, his 18 years old and basically has shown signs of the illness since January 2014 and only had diarrhoea and vomiting in January, since then he has been losing weight but no other symptoms.
I have had crohns for 33 years never had diarrhoea just major pains or some vomiting now and again.
Surely the operation is the last result but not the only result.
Please advice me asap
I am a newbie I have had Crohn's disease since 1983 no operations thank god, currently taking pentasa 2mg, B12 injections and vitamin D injections and scandishakes, hate them.
My 18 year old son was diagnosed last Thursday, I had to fight to get referred as GP believe it was an viral infection Jan 2014 took my son to GP 20 times keep asking please check for Crohns but she did nothing, until on 28th Jan 2014, I went to GP and threaten her with media coverage for neglect for my son, who also has cerebral palsy, she finally referred him and he was fast track, appointment came and saw a specialists in Feb 2014 and they tests started quickly, on Thursday las week he had MRI, colonoscopy, endoscopy, gastroscope
all in one way he was completely sedated for these, anywhere he woke up and vomited once it was quiet a lot, however I said this is due to all the meds you have given him, he told me that my son large intestine was inflamed and the crohns was acute, he then said that if the meds don't work he would need an operation ASAP and the chances of survival was 10% because he is so poorly and underweight. I was shocked surely the medication is there to control the inflammation even if it is acute, his 18 years old and basically has shown signs of the illness since January 2014 and only had diarrhoea and vomiting in January, since then he has been losing weight but no other symptoms.
I have had crohns for 33 years never had diarrhoea just major pains or some vomiting now and again.
Surely the operation is the last result but not the only result.
Please advice me asap