Hello everyone,
We are going through the diagnosis process for Crohns for my son. It’s been a few rough months for us ...
My son has two perianal fistulas. I like to know if anyone in here is diagnosed with perianal Crohns if all the scopes and test are normal. We have done colonoscopy, endoscopy, MRI, MRE, exam under anesthesia, biopsies, pill cam, blood tests, and stool tests. Everything is normal. He also has no belly pain or diarrhea. His first GI had a hard time diagnosing him with Crohns given the normal scopes/tests. He referred us to one of the top IBD centers in Los Angeles area. The IBD colorectal surgeon examined him under anesthesia and placed two setons, but says the fistulas do not have appearance of the Crohn fistula plus the biopsies are normal. The new GI, however thinks the fistulas are indicative of Crohn, and wants to start him with biologic treatment to heal the fistulas. At the same time, he can not tell us for sure that this is Crohns. He does not think we should decide quickly, but in the next month or so. I am a bit reluctant to start biologists if we don’t have clear diagnosis. Any advice?
We are going through the diagnosis process for Crohns for my son. It’s been a few rough months for us ...
My son has two perianal fistulas. I like to know if anyone in here is diagnosed with perianal Crohns if all the scopes and test are normal. We have done colonoscopy, endoscopy, MRI, MRE, exam under anesthesia, biopsies, pill cam, blood tests, and stool tests. Everything is normal. He also has no belly pain or diarrhea. His first GI had a hard time diagnosing him with Crohns given the normal scopes/tests. He referred us to one of the top IBD centers in Los Angeles area. The IBD colorectal surgeon examined him under anesthesia and placed two setons, but says the fistulas do not have appearance of the Crohn fistula plus the biopsies are normal. The new GI, however thinks the fistulas are indicative of Crohn, and wants to start him with biologic treatment to heal the fistulas. At the same time, he can not tell us for sure that this is Crohns. He does not think we should decide quickly, but in the next month or so. I am a bit reluctant to start biologists if we don’t have clear diagnosis. Any advice?