Hey my fellow crohnies!
Im new to this site but ive been reading from this thread for a long time! Everyone is just so supportive and we all can relate.. Heres my story im 28 and a mother of a 5 and 1 year old. I had my disease for 12 years. In 2010 I recieved bowel resection surgery after numerous of medication and remicade fails! Since the surgery I was in remission for 10 years...(crohns who? Not me this sugery had me acting up.. Never saw a GI again, no stomach pains, and no nasty loud fistulas) I was then got pregnant with my 1 year old.. even gained weight til i was over 200 pounds (that may sound like alot but im 5'9 and never been over 180 pregnant or not) still no sight of crohns. I gave birth june 2016.. dum dum duummmmmm... my crohns resurfaced like did you miss me? No crohns I didnt miss you! How did I even end up with you? I feel like im in a relationship and my parter is not getting the hint that I no longer want this relationship.. my once slim thickness is now slim boney. I weigh 118 now. My once confident self always walks with her head down now. I have a draining fistula that dont stop draining! And an abscess in my psoas muscle that just dont stop draining either (I should add that I have a penrose drain in my fistula as well as my abscess in my back) had it since nov 2017. Ive been so close to death so many times with this disease. And you dont realize that the disease may not cant kill you but the affects the disease can and its scary. After losing over 100 pounds fast and not being able to work because of hospital admissions I found my self applying for SSDI. After 3 months I got found eligible so one less thing to worry about. The next option is a stoma bag or something of the sort.. but i dont want it. Im eligible for medical marijuana and im going to persue it. Desperate times call for desperate measures. I need my weight back! Not all of it just give me some So I dont have to look like a skeleton walking and maybe a few pounds back in the bottom area but hey! I want to try to whey protien as well as collgen powder, hemp oil with the medical marijuana. Everytime I go to the doctor they give me cipro and methronidazole.. no matter who! Same crap that doesnt work and gives me bad side affects so I think its time I try to see if I can help myself the natural way.. well .. you know what I mean!
Sorry for the long post, I can go on and on about this disease
Im new to this site but ive been reading from this thread for a long time! Everyone is just so supportive and we all can relate.. Heres my story im 28 and a mother of a 5 and 1 year old. I had my disease for 12 years. In 2010 I recieved bowel resection surgery after numerous of medication and remicade fails! Since the surgery I was in remission for 10 years...(crohns who? Not me this sugery had me acting up.. Never saw a GI again, no stomach pains, and no nasty loud fistulas) I was then got pregnant with my 1 year old.. even gained weight til i was over 200 pounds (that may sound like alot but im 5'9 and never been over 180 pregnant or not) still no sight of crohns. I gave birth june 2016.. dum dum duummmmmm... my crohns resurfaced like did you miss me? No crohns I didnt miss you! How did I even end up with you? I feel like im in a relationship and my parter is not getting the hint that I no longer want this relationship.. my once slim thickness is now slim boney. I weigh 118 now. My once confident self always walks with her head down now. I have a draining fistula that dont stop draining! And an abscess in my psoas muscle that just dont stop draining either (I should add that I have a penrose drain in my fistula as well as my abscess in my back) had it since nov 2017. Ive been so close to death so many times with this disease. And you dont realize that the disease may not cant kill you but the affects the disease can and its scary. After losing over 100 pounds fast and not being able to work because of hospital admissions I found my self applying for SSDI. After 3 months I got found eligible so one less thing to worry about. The next option is a stoma bag or something of the sort.. but i dont want it. Im eligible for medical marijuana and im going to persue it. Desperate times call for desperate measures. I need my weight back! Not all of it just give me some So I dont have to look like a skeleton walking and maybe a few pounds back in the bottom area but hey! I want to try to whey protien as well as collgen powder, hemp oil with the medical marijuana. Everytime I go to the doctor they give me cipro and methronidazole.. no matter who! Same crap that doesnt work and gives me bad side affects so I think its time I try to see if I can help myself the natural way.. well .. you know what I mean!
Sorry for the long post, I can go on and on about this disease