Hi,
I'm new here but hoping for advice/consolation! I'm having surgery next week for bowel cancer following nearly thirty years of Crohns and went to see specialist stoma nurse yesterday who was really nice. The problem is, she said my file said I was going to have a colostomy which confused me a bit because I thought the surgeon had said he was going to do an ileostomy (I had a temporary one which was reversed after a year a long time ago). ANYway, she then spent an hour telling me how very much better the colostomy would be than the ileostomy, much less noticeable, much easier to deal with and adapt to etc etc and I went home feeling quite jolly until I spoke to surgeon's secretary this morning who said she was pretty sure they were going to do an ileostomy. Am now feeling a bit crushed and wished I hadn't seen nurse as I was quite happy before in my ignorance that I was getting the worse deal!
Has anyone any cheery words, ideally saying that colostomies are rubbish and the ileostomy is the go-to operation, especially as there is no going back this time?!
I'm new here but hoping for advice/consolation! I'm having surgery next week for bowel cancer following nearly thirty years of Crohns and went to see specialist stoma nurse yesterday who was really nice. The problem is, she said my file said I was going to have a colostomy which confused me a bit because I thought the surgeon had said he was going to do an ileostomy (I had a temporary one which was reversed after a year a long time ago). ANYway, she then spent an hour telling me how very much better the colostomy would be than the ileostomy, much less noticeable, much easier to deal with and adapt to etc etc and I went home feeling quite jolly until I spoke to surgeon's secretary this morning who said she was pretty sure they were going to do an ileostomy. Am now feeling a bit crushed and wished I hadn't seen nurse as I was quite happy before in my ignorance that I was getting the worse deal!
Has anyone any cheery words, ideally saying that colostomies are rubbish and the ileostomy is the go-to operation, especially as there is no going back this time?!