Hi everyone! First of all, I truly feel that anyone facing this illness is a true warrior. My 25 yr old daughter was diagnosed with CROHN'S during her last year in HS. She suffered since age 7 with digestive issues and it wasn't until 18 that we found a GI that solved the puzzle.
She took the flagil, 6 mp, prednisone for about six months until she decided meds made her feel worse than the CROHN'S and against her drs recommendation, she stopped taking all meds.
She learned how to tolerated the pain and luckily did not have the run to the bathroom issue.
Now, approx 5 yrs after her diagnosis it finally hit hard. Hospital with abscess and infection. Luckily antibiotics worked. Dr put her on prednisone but not doing the job. Starts Remicade on Thursday and I'm petrified.
Scared not only about side effects but praying it helps. She has been in non stop pain for three weeks, has lost 20 lbs., and doesn't sleep. Has high pressure job and crawls into work regardless of pain. She tells me she can't live with the pain.
How possible is it that she will feel some comfort after first infusion? I see most experience being tired after treatment. Is it recommended she does not go into work day of infusion? She lives alone and Im freaking out she will have some adverse side effect and will have no one there to help.
Any advice?
She took the flagil, 6 mp, prednisone for about six months until she decided meds made her feel worse than the CROHN'S and against her drs recommendation, she stopped taking all meds.
She learned how to tolerated the pain and luckily did not have the run to the bathroom issue.
Now, approx 5 yrs after her diagnosis it finally hit hard. Hospital with abscess and infection. Luckily antibiotics worked. Dr put her on prednisone but not doing the job. Starts Remicade on Thursday and I'm petrified.
Scared not only about side effects but praying it helps. She has been in non stop pain for three weeks, has lost 20 lbs., and doesn't sleep. Has high pressure job and crawls into work regardless of pain. She tells me she can't live with the pain.
How possible is it that she will feel some comfort after first infusion? I see most experience being tired after treatment. Is it recommended she does not go into work day of infusion? She lives alone and Im freaking out she will have some adverse side effect and will have no one there to help.
Any advice?