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Defining pediatric ibd subtypes

SupportiveMom

SupportiveMom

Cool! 2 of our doctors are on this paper! This further enforces why I don't see how I could ever debate a jpouch for D. She has been diagnosed all over the spectrum. Maybe genetic testing I have access to would help. We contributed to the GEM project but they don't share those results with you as you become a number and almost no one knows who is which number.
 
Pilgrim

Pilgrim

This was a very interesting read. I could see my daughter in a certain type description. I just wish that there were more predictors with this of future disease activity. I also wish I had access to genetic testing to see if it all lined up.

I truly hope this leads to specific drug modifications per type.
 
Pilgrim

Pilgrim

One thing (sorry to post double here) I also wondered as I was reading was about disease location and activity per the very early onset group. Does that change? Or do you fall into a disease type and it remains?
 
Mr chicken

Mr chicken

The studies on what the actual phenotype a are is relatively new
So no longer term you have xyz and it will stay version xyz after 20 years
 
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