Hi everyone:
I'm hoping for some input/wisdom from those who have experience with Remicade.
I got my first Remicade infusion on Sept. 21 and am scheduled for my next one on Tuesday.
Yesterday morning, I woke up and couldn't get out of bed. It felt like both my ankles were sprained, and that someone had hit me with a baseball bat on my wrists, shoulders, and knees. While I have had joint pain for years, this was something else altogether. And the pain felt like it was in the joints, but the pain extends to muscular pain as well as pain in the connective tissues.
After a few hours, the intensity of the pain subsided, and all seemed reasonably okay. Then, at about 5 in the afternoon, I started getting the same intensity of pain back in my knees, but also in my upper thighs/pelvis area, and along my jaw/mouth. My mouth felt like I had a series of abscesses and once again, I couldn't get out of bed or move around from the pain in my legs. My temperature hovered around 38.7/101.6.
I decided to take Benadryl at around 7:30 and fell asleep. Around 3 am when I woke up, the intensity again had gone down, but the pain is still persistent although, now it is bearable and I have some mobility.
Has anyone else experienced this? The only thing my brain can think of is that this might be a delayed reaction to Remicade. But what I do know for sure is that there are a lot of people on this site with a lot more knowledge, wisdom and experience than me...
I'm hoping for some input/wisdom from those who have experience with Remicade.
I got my first Remicade infusion on Sept. 21 and am scheduled for my next one on Tuesday.
Yesterday morning, I woke up and couldn't get out of bed. It felt like both my ankles were sprained, and that someone had hit me with a baseball bat on my wrists, shoulders, and knees. While I have had joint pain for years, this was something else altogether. And the pain felt like it was in the joints, but the pain extends to muscular pain as well as pain in the connective tissues.
After a few hours, the intensity of the pain subsided, and all seemed reasonably okay. Then, at about 5 in the afternoon, I started getting the same intensity of pain back in my knees, but also in my upper thighs/pelvis area, and along my jaw/mouth. My mouth felt like I had a series of abscesses and once again, I couldn't get out of bed or move around from the pain in my legs. My temperature hovered around 38.7/101.6.
I decided to take Benadryl at around 7:30 and fell asleep. Around 3 am when I woke up, the intensity again had gone down, but the pain is still persistent although, now it is bearable and I have some mobility.
Has anyone else experienced this? The only thing my brain can think of is that this might be a delayed reaction to Remicade. But what I do know for sure is that there are a lot of people on this site with a lot more knowledge, wisdom and experience than me...