Hi everybody,
I am 24 years old, born&raised in Czech republic (so please excuse my strange English
) in family of four women (mom, 2 older sisters, me). My father left us when I was 3 months old and my mother didn't really try to do her best raising us - she beat us, tortured, didn't care about our health and problems at all. I ran away when I was 17.
The worst adventures started 8 years ago, when I got a cystitis, which became chronic. I found out, that my kidneys were kind of damaged since I was born. That means I shouldn't be drinking black tea, coffee, eating citrus fruits, etc. I wish my mother had told me that. She knew, she just decided not to deal with it. Health care in our country is quite poor, every sore throat is treated by ATB, so after few years of taking ATBs for kidneys my organism just said "enough!"
In the age of 20 I got chickenpox, year after that salmonella, I was almost forced to leave university, but somehow I finished it. Since then it looks like I have no imune system, I catch every cold, I feel like complete cripple.
In autumn 2011 I strated feeling like my stomach was digesting itself, my doctor thought it was gastric ulcer, but endoscopy didn't find anything. Problems stopped four months later, when I excluded dairy products. In December 2012 I started to sense some uncomfortable feeling in my stomach again, but it was slowly becoming worse. Diarrhea, vomiting, various diets. Weight loss was really cool (at the beginning, now I am getting concerned), although I couldn't eat many things. Doctors ran different blood test, performed colonoscopy, endoscopy and ultrasonography, everything was clear, except stomach tissue histology, that confirmed lactose intolerance. For that I got omeprazole (doesn't help much). The newest doctor's suspicion is CD. Another series of testing coming up in May.
In past few weeks I couldn't eat anymore, fainted few times and feel like dying every morning in the bathroom. I am so weak that I was told not to leave apartment, it's like being a prisoner in your own house. I get pretty scared here each time I fall, ache or vomit. I feel quite alone, because nobody around me knows, what horror I am going through each day. I have no idea, how my boyfriend manages both work and taking care of me. Without him, I would probably be already dead. Sometimes I think it would solve everybody's problems...
I had to leave university and ended without money (no money from government till there is a diagnosis), living with my boyfriend, who pays rent, buys food and medicine and slowly becomes tired too. I just don't want to lose him due to this annoying tummy-ache. Which young man is prepared to see the future mother of his children as dependent wreck with bruises all over her body, vomiting in the bathroom for the third time that day...?
Sorry about all this no-good stuff I've written. I am just learning to live with the simple truth that there are things like my stomach and bowels, which are never responding to yelling, pleas, tears. And I seem not to handle it very well. I just wish to find a way to live through all of this. Preferably in one piece.
To all of you I wish you get as healthy as possible in no time!
I am 24 years old, born&raised in Czech republic (so please excuse my strange English
) in family of four women (mom, 2 older sisters, me). My father left us when I was 3 months old and my mother didn't really try to do her best raising us - she beat us, tortured, didn't care about our health and problems at all. I ran away when I was 17.The worst adventures started 8 years ago, when I got a cystitis, which became chronic. I found out, that my kidneys were kind of damaged since I was born. That means I shouldn't be drinking black tea, coffee, eating citrus fruits, etc. I wish my mother had told me that. She knew, she just decided not to deal with it. Health care in our country is quite poor, every sore throat is treated by ATB, so after few years of taking ATBs for kidneys my organism just said "enough!"
In the age of 20 I got chickenpox, year after that salmonella, I was almost forced to leave university, but somehow I finished it. Since then it looks like I have no imune system, I catch every cold, I feel like complete cripple.
In autumn 2011 I strated feeling like my stomach was digesting itself, my doctor thought it was gastric ulcer, but endoscopy didn't find anything. Problems stopped four months later, when I excluded dairy products. In December 2012 I started to sense some uncomfortable feeling in my stomach again, but it was slowly becoming worse. Diarrhea, vomiting, various diets. Weight loss was really cool (at the beginning, now I am getting concerned), although I couldn't eat many things. Doctors ran different blood test, performed colonoscopy, endoscopy and ultrasonography, everything was clear, except stomach tissue histology, that confirmed lactose intolerance. For that I got omeprazole (doesn't help much). The newest doctor's suspicion is CD. Another series of testing coming up in May.
In past few weeks I couldn't eat anymore, fainted few times and feel like dying every morning in the bathroom. I am so weak that I was told not to leave apartment, it's like being a prisoner in your own house. I get pretty scared here each time I fall, ache or vomit. I feel quite alone, because nobody around me knows, what horror I am going through each day. I have no idea, how my boyfriend manages both work and taking care of me. Without him, I would probably be already dead. Sometimes I think it would solve everybody's problems...
I had to leave university and ended without money (no money from government till there is a diagnosis), living with my boyfriend, who pays rent, buys food and medicine and slowly becomes tired too. I just don't want to lose him due to this annoying tummy-ache. Which young man is prepared to see the future mother of his children as dependent wreck with bruises all over her body, vomiting in the bathroom for the third time that day...?
Sorry about all this no-good stuff I've written. I am just learning to live with the simple truth that there are things like my stomach and bowels, which are never responding to yelling, pleas, tears. And I seem not to handle it very well. I just wish to find a way to live through all of this. Preferably in one piece.
To all of you I wish you get as healthy as possible in no time!
