GNC Crohn's Man
Vita-Man
Hi my name is Daniel,
I was diagnosed with Crohn's at the age of 13. I spent 9 months of local doctors telling me I had "bad gas" and I needed to eat right and all my problems would go away... I was eventually hospitalized (Flowers Hospital Dothan, AL) and the doctors their knew there was something seriously wrong but they didn't know what to do... So I was transfered to USA Womens and Childrens Hospital (Mobile, AL) Where Dr. Griems (not sure on spelling) diagnosed me with crohn's disease.. That doc was a pediatric gastrointerlogist..
I got put on prednsione gained some weight... I went from deathly skinny to just skinny... I didn't really have any more major problems until I was 17... Since then I have batteling my crohn's and something else that's obscure called conversion disorder..
Crohn's you know about... Conversion disorder is case specfic... Imagine if you stand up in a chair to quickly and get really lightheaded and dizzy... Now imagine feeling like that all the time.. The more you try to concentrate on something physicaly or mentally it becomes worse... It took them 3 years and about 7 doctors to diagnose me with that... I have found it is a good thing though that I have the conversion disorder... It is my bodies way of telling me I'm under to much stress so I need to slow down or it will slow me down... Due to the crohn's and my past 2 surgieres from the crohn's I have a huge pain tolerance... So if I were in school I could literially work myself to death because I would not be eating right and I would be under constant stress which would cause the crohn's to flare up...
This I just stole from my blog on myspace... I hate retyping junk again and again...
http://profile.myspace.com/index.cfm?fuseaction=user.viewprofile&friendID=91404811
If I could just help one person to feel better then I would be happy...
Well that's most of my story... As I told your admin you can either believe it and accept me with open arms or burn me at the stake for being a hertic...
Okays bye bye
I was diagnosed with Crohn's at the age of 13. I spent 9 months of local doctors telling me I had "bad gas" and I needed to eat right and all my problems would go away... I was eventually hospitalized (Flowers Hospital Dothan, AL) and the doctors their knew there was something seriously wrong but they didn't know what to do... So I was transfered to USA Womens and Childrens Hospital (Mobile, AL) Where Dr. Griems (not sure on spelling) diagnosed me with crohn's disease.. That doc was a pediatric gastrointerlogist..
I got put on prednsione gained some weight... I went from deathly skinny to just skinny... I didn't really have any more major problems until I was 17... Since then I have batteling my crohn's and something else that's obscure called conversion disorder..
Crohn's you know about... Conversion disorder is case specfic... Imagine if you stand up in a chair to quickly and get really lightheaded and dizzy... Now imagine feeling like that all the time.. The more you try to concentrate on something physicaly or mentally it becomes worse... It took them 3 years and about 7 doctors to diagnose me with that... I have found it is a good thing though that I have the conversion disorder... It is my bodies way of telling me I'm under to much stress so I need to slow down or it will slow me down... Due to the crohn's and my past 2 surgieres from the crohn's I have a huge pain tolerance... So if I were in school I could literially work myself to death because I would not be eating right and I would be under constant stress which would cause the crohn's to flare up...
This I just stole from my blog on myspace... I hate retyping junk again and again...
http://profile.myspace.com/index.cfm?fuseaction=user.viewprofile&friendID=91404811
As far as me replying all the time to these posts it gives me something to do and helps to make me feel useful... As I stated above I have been in the hospital this past month plus I had surgery back in March of this year... So I really haven't worked that much in the past 6 months... I just want to feel like I am of some use to somebody.... I'm tired of my family worrying about me and trying to take care of me... I want to able to take of myself and others..How I have been...
I was just released from the Hospital on Wednesday August the 30th... I have been in the hospital for almost a month.. I went in for one week... They thought they had fixed me.... Silly them I was back in the hospital 2 days later for another week... Again thought I was fixed... Two days later I went back to the hospital for 2 weeks...
Am I going to have to go back to the hospital again? I don't know...
My main problem is the medicine used to treat Crohn's disease is a very High Dosage of a corticosteriod... It reduces inflmation and supress the bodies immune system.. It works great for acute inflamtion like with the crohn's.. The bad part is it wreaks havoc on my body both mentally and physicaly...
The amount of corticosteriods(IV infused) I have been on has been enough to drive a normal person into a nervous breakdown in 1 day... I was on it for 30...
I'm still on a VERY high dose.... Btw this stuff directly affects cortisone... You know that stress hormone... Right now my body is going through about 6-8 times the amount of physcial and mental stress a normal person goes through every day...
I am taking medication to keep me sane, from getting cancer from this medcine, to keep my bones from falling apart, and to keep me somewhat heealthy... Also to make sure the acid scaring in my throat and stomach and intestines heals up...
Previously I had surgery earlier this year... They did a foot long cut along my belly vertically... Just like the old C sections... They removed 6 inches of my small intestine then...
In 2003 I had another surgery same foot long cut... They actually just reopened the old scar for the surgery in march 06... Thye removed another 6 inches of my small intestine, my appendix, and fixed two fistulas connecting my bladder to my small intestines...
As far as school goes I have given up on it for now.. from 2002-2004.. I tried school... I think I attempted about 6 semesters.... I manged to complete a whole whoaping 6 hours out of 80+ attempted due to medical reasons...
In Summer 2004 I started working for GNC as a sales associate... I'm still working their now... I'm not working atm... I plan on working again soon...
I know tons about Vitimens, Herbs and minerals now though... Also about sports products and a lot of other crap...
I'm taking teh best care of myself right now and I'm taking the maximum amount of supplements/prescrpiton stuff to make me healthy without over doing it...
I don't really know how I feel... Right now I'm in some pain because I had 1 piece of fudge...
I have to figure out what foods I can tolerate and in what amounts...
Mainly I'm tired... I want to be off of all these steriods and just feel normal... But that won't be for another 5 months or so... If you come off the steriods too fast the crohn's acts up, or my body acts up, or if you come off of it way to fast then you go into adernal gland failure... Yes my adernal gland part that makes cortisone is not working... It won't start working again until I hit about 10 mg of prednisone a day... Right now I'm at 60mg (30 every 12 hours) a day... I stay on this dosage for 2 weeks before I step down to 55 mg... That's just 5 mg lower every two weeks... So it's gonna be a slow hard struggle...
And that is what I have been up to and how I have been....
If I could just help one person to feel better then I would be happy...
Well that's most of my story... As I told your admin you can either believe it and accept me with open arms or burn me at the stake for being a hertic...
Okays bye bye