My GI found ulcers in the duodenum of my small intestines with the pill cam. He has not looked at my large intestines yet but, my previous GI found ulcers and inflammation in my large intestines along with a fissue. My new GI states that the previous findings were "inconlusive" (even though my previous GI said the biopsies were conclusive). My new GI does not think I have Crohn's disease at all and is working on a new diagnosis. Given the previous findings of inflammation, ulcers and fissures, I am having a hard time understanding what diagnosis he is thinking it is and what I should do in this situation. He thinks I just have peptic ulcers and they have nothing to do with Crohn's Disease.
Basically, I want to hear experiences of people who have had ulcers in their duodenum and what ended up being the diagnosis. Did they end up being peptic ulcers and totally separate from Crohn's? Did the doctor misdiagnosis them before added them to the Crohn's diagnosis? Mostly, I want to have an idea what to expect and to hear other people's experiences.
Sorry for the long post, I am just nervous about all this and want some stories to understand what is in store. It is scary to have a diagnosis of Crohn's Disease come out after 6 years of uncertainty and then have it questioned again by a new GI. I am on Cimzia and it is helping immensely but, if this new GI goes back on the diagnosis, I will have to start all over. I don't know that I have the emotionally endurance to go through the last 10 years of getting a diagnosis and finding a medication that works again..
Thank you for any and all replies!
Basically, I want to hear experiences of people who have had ulcers in their duodenum and what ended up being the diagnosis. Did they end up being peptic ulcers and totally separate from Crohn's? Did the doctor misdiagnosis them before added them to the Crohn's diagnosis? Mostly, I want to have an idea what to expect and to hear other people's experiences.
Sorry for the long post, I am just nervous about all this and want some stories to understand what is in store. It is scary to have a diagnosis of Crohn's Disease come out after 6 years of uncertainty and then have it questioned again by a new GI. I am on Cimzia and it is helping immensely but, if this new GI goes back on the diagnosis, I will have to start all over. I don't know that I have the emotionally endurance to go through the last 10 years of getting a diagnosis and finding a medication that works again..
Thank you for any and all replies!