Do you ever wish?

Crohn's Disease Forum

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Ckt

Joined
Aug 6, 2012
Messages
260
Yeah..I sure do!:) so many things but right now I wish my crohns would sit up and have a huge sign saying 'HERE I AM!!' my crohns had never presented in a textbook fashion whatever that is! But my inflammatory markers have always been nil, the only thing that shows up occasionally is inflammation on cat scan..I've had 13!cat scans this year alone!!i feel like cancer woman walking!!
How has your IBD presented itself?do you have weird symtpoms or symptoms that don't match tests, scopes,etc?
I'd love to hear your stories!:ghug:
 
So far it has presented itself in the following ways for me:

Uveitis (for two months, prior to diagnosis)
Bleeding/puffy gums
Ulcers lining my colon
Loss of appetite
Fatigue & confusion (leading to poor work performance)
Stiff/sore knee joints
Bloody stool
Mucous stool
Diarrhea
Constipation (when on prednisone)
Stomach gurgling ALL DAY (very embarrassing) no matter what the circumstances are
Burning sensations in my abdominal area
Cramping or what feels like pins sticking my intestines
Lower back pain
Spontaneous fevers (one minute I'm fine, the next minute I have 102 fever, then I am fine again a few hours later...)
Vomiting

Quite frankly all the testing for internal symptoms is exhausting as well (Blood tests, stool tests, colonoscopies, poking & prodding) not to mention the medication side effects.

Just have to keep fighting and be grateful for/take advantage of those days where we feel at our best or better than we were before.

And honestly, my wish is that my crohn's would say "hey, sorry for what I did to you. As a peace offering, I'm going to mend you right up and part ways with you so you can begin to live the healthy, happy life you deserve to live".....yeah, right! LOL

:hang:
 
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