Hello, All.
So glad to find this support group. This is my first post. I have had Crohn's for six years. Was first diagnosed in Texas then moved to Atlanta, Georgia. Went through a terrible two years, then went into remission for three years (simple over the counter probiotic put me in remission), then the disease came back a year ago. These last few weeks have been horrendous. Pain and bloating. Had a colonoscopy two weeks ago that showed "No signs of anything wrong" (?????) then had an MRI yesterday that "seriously suggested Crohn's" (If not Crohn's, then what is causing this horrific bloating and pain?) The doctor said it looked pretty bad in the terminal ileum. No blockage, but lots of stenosis- possible fistula.
I just started my Prednisone tonight, and the doctor wants me to start Remicade next week. I am so scared.
This medicine seems like such a risk. I know that I have to do something about this most recent attack. I cannot live like this. The pain makes me want to die. But I have to stay strong, as a I have a beautiful little three year old girl who needs me.
I am considering suggesting to my doctor that I try LDN prior to the Remicade. It seems like there are fewer side effects, and since my Crohn's was in remission for so long with only a probiotic pill, I keep hoping that I can find a medicine with few side effects that will help me.
What do you all think? Should I push for the LDN, or should I just suck it up and accept the Remicade? Has anyone ever been on both meds at once?
Right now I am only on prednisone (which he is going to wean me off of as soon as I start Remicade). I was on Pentassa, which did not nothing. Then I was on Bentyl, which made things worse. I also take Ultram (Tramadol) for pain, but I hope that the prednisone will alleviate the need for that. I know I can't take the Ultram with the LDN and am willing to give it up if my doc will let me try the LDN.
I need my life back. My daughter needs her mom back. I really appreciate any ideas.
Thanks so much!
So glad to find this support group. This is my first post. I have had Crohn's for six years. Was first diagnosed in Texas then moved to Atlanta, Georgia. Went through a terrible two years, then went into remission for three years (simple over the counter probiotic put me in remission), then the disease came back a year ago. These last few weeks have been horrendous. Pain and bloating. Had a colonoscopy two weeks ago that showed "No signs of anything wrong" (?????) then had an MRI yesterday that "seriously suggested Crohn's" (If not Crohn's, then what is causing this horrific bloating and pain?) The doctor said it looked pretty bad in the terminal ileum. No blockage, but lots of stenosis- possible fistula.
I just started my Prednisone tonight, and the doctor wants me to start Remicade next week. I am so scared.
This medicine seems like such a risk. I know that I have to do something about this most recent attack. I cannot live like this. The pain makes me want to die. But I have to stay strong, as a I have a beautiful little three year old girl who needs me.
I am considering suggesting to my doctor that I try LDN prior to the Remicade. It seems like there are fewer side effects, and since my Crohn's was in remission for so long with only a probiotic pill, I keep hoping that I can find a medicine with few side effects that will help me.
What do you all think? Should I push for the LDN, or should I just suck it up and accept the Remicade? Has anyone ever been on both meds at once?
Right now I am only on prednisone (which he is going to wean me off of as soon as I start Remicade). I was on Pentassa, which did not nothing. Then I was on Bentyl, which made things worse. I also take Ultram (Tramadol) for pain, but I hope that the prednisone will alleviate the need for that. I know I can't take the Ultram with the LDN and am willing to give it up if my doc will let me try the LDN.
I need my life back. My daughter needs her mom back. I really appreciate any ideas.
Thanks so much!