Hello everyone. My daughter suggested I tried looking at a forum to find people who would understand how I'm feeling, so i did and already I feel like I have discovered something amazing in the stories and posts that I have read.
This is my story.......nov 2012 I thought my tummy pain was a pulled muscle from exercise i was doing to lose weight, but then the pain moved to underneath my rib cage, it got so intense that I went to A & E (really expecting to get a dr to tell me it was all grand and the pain would disappear) hmmmm, that didn't happen. Instead a CT revealed that I had a narrowing of the terminal ileum and enlarged lymph nodes, bloods showed inflammation levels of 200 and any time someone tried to examine me it felt like torture. Then came the diagnosis of IBD, followed by colonoscopy!! Biopsies showed non-specific IBD but as all findings and symptoms point to Crohns that's what they have decided is wrong. I also had an endoscopy, again biopsy results were non-specific and they found a small hiatus hernia. I spent 2 weeks in hospital and lost 12 pounds. The Dr looking after me now is amazing.
This has changed my life. I have been living with type 1 diabetes for 17 years, always impossible to control until last year when for the first time I got it sorted and was doing really well. I was devastated to now have IBD, trying to marry the 2 conditions is a nightmare and I'm struggling to keep sane. On top of that I have had 2 surgeries , I had a sub-acromial decompression on my left shoulder and I had a ganglion and small swelling removed from my right wrist, unfortunately the wrist surgery caused internal scarring so I now have reduced strength and movement plus have constant pain when I use my hand (I'm right handed). I lost my job because the healing process was too slow, so now i have to try to live off benefits, which I'm very embarrassed about and ESA say I'm fit to work but I know I'm not. I have chronic pain in my knees, hip, lumbar back, sacroiliitis, upper back and neck!! An MRI a few weeks back showed osteoarthritis in the lumbar region with a tear and a bulging disc. A week after getting out of hospital I had laser treatment for diabetic maculopathy in my right eye. I am totally overwhelmed at now having to manage a new condition.
I'm sorry for going on so long, sometimes I feel like my head is going to explode. I have constant pain in the lower right portion of my tummy, the meds are having a really detrimental effect on my blood sugar control and I feel lost Saw dietitian last week and she said I may need surgey to remove a stricture, I really don't think I can take any more.
I would be grateful for any response, having read some posts I know I'm not alone, but sitting here everyday does make me feel very isolated. Look forward to hearing from you.
Thanks for reading.
This is my story.......nov 2012 I thought my tummy pain was a pulled muscle from exercise i was doing to lose weight, but then the pain moved to underneath my rib cage, it got so intense that I went to A & E (really expecting to get a dr to tell me it was all grand and the pain would disappear) hmmmm, that didn't happen. Instead a CT revealed that I had a narrowing of the terminal ileum and enlarged lymph nodes, bloods showed inflammation levels of 200 and any time someone tried to examine me it felt like torture. Then came the diagnosis of IBD, followed by colonoscopy!! Biopsies showed non-specific IBD but as all findings and symptoms point to Crohns that's what they have decided is wrong. I also had an endoscopy, again biopsy results were non-specific and they found a small hiatus hernia. I spent 2 weeks in hospital and lost 12 pounds. The Dr looking after me now is amazing.
This has changed my life. I have been living with type 1 diabetes for 17 years, always impossible to control until last year when for the first time I got it sorted and was doing really well. I was devastated to now have IBD, trying to marry the 2 conditions is a nightmare and I'm struggling to keep sane. On top of that I have had 2 surgeries , I had a sub-acromial decompression on my left shoulder and I had a ganglion and small swelling removed from my right wrist, unfortunately the wrist surgery caused internal scarring so I now have reduced strength and movement plus have constant pain when I use my hand (I'm right handed). I lost my job because the healing process was too slow, so now i have to try to live off benefits, which I'm very embarrassed about and ESA say I'm fit to work but I know I'm not. I have chronic pain in my knees, hip, lumbar back, sacroiliitis, upper back and neck!! An MRI a few weeks back showed osteoarthritis in the lumbar region with a tear and a bulging disc. A week after getting out of hospital I had laser treatment for diabetic maculopathy in my right eye. I am totally overwhelmed at now having to manage a new condition.
I'm sorry for going on so long, sometimes I feel like my head is going to explode. I have constant pain in the lower right portion of my tummy, the meds are having a really detrimental effect on my blood sugar control and I feel lost Saw dietitian last week and she said I may need surgey to remove a stricture, I really don't think I can take any more.
I would be grateful for any response, having read some posts I know I'm not alone, but sitting here everyday does make me feel very isolated. Look forward to hearing from you.
Thanks for reading.