hi tlc,
I am a female crohn's person who's had CD since the age of 12. live in NY state like yourself.
Most GIs where I live are shying away from the prednisone because of the long term side effects if patients are on them for several years. Can you ask your GI if you're a candidate for Entocort? It's a steroid BUT it doesn't have the side effects like prednisone--sweating, insomnia, increased appetite, anxiety, bone loss if on it for over 10 years, etc.
I've been on Entocort for a while and I feel wonderful. No side effects at all and the best part is that I don't have the mood swings like I had on prednisone.
It does get better. You and your GI just need to come up with a game plan and find a treatment that works well for you. Seeing as you're experiencing side effects, I'd give your GI a call and tell him that it's affecting your daily life style and want to try something else.
I can relate to being hospitalized. I was in the hospital last year due to pancreatitis and salmonella poisoning. Talk about pain galore.
Feel free to PM me anytime if you have questions. I am here for you. I've been a member of the local CCFA chapter and the local ostomy support group for over 20 years in both groups.
Browse around this site and check out the wiki information. there is so much to read so don't be overwhelmed. Just take it a little at a time.
Feel better. Gutless Wonderwoman