Does it really matter if the doctor knows what they are doing with treating Crohn's or do I just need one that will write a prescription for Humira?
Was diagnosed with Crohn's disease at the Rochester, MN. Mayo Clinic a couple of months ago but had to get a local GI doctor for long-term med treatment & monitoring. Had tried Budesonide, Prednisone & Imuran, none of which offered much help but many serious side-effects. Still tapering Prednisone though.
I had to call the Mayo doctor because my local GI doctor said with regards several things "she was just guessing" and that they do not have a lot of experience in IBD. This even though when I made the first appointment was told Crohn's was one of their specialities.
The Mayo Clinic doctor said I need to be on Humira or Remicade. Remicade is off the list because my insurance lists it as not covered by my plan. Humira has to be applied for approval. Because of major complications from the first meds and my condition, they said I need a doctor with heavy experience & knowledge with Crohn's. Further the Mayo suggested some names of good GI doctors but either they are not covered by insurance or appointments are over three months out and they do not think I can wait that long for Humira.
Reading reviews for GI doctors (healthgrades, vitals, etc.) have seen some scary reports from patients. Yes I know you have to take some with a grain of salt and some are fake reviews from the doctors but some have seen with many reviews saying no returned phone calls, won't answer questions, etc. so not sure what I'd be getting from them other than a prescription.
Thank You for any info you can provide.
Was diagnosed with Crohn's disease at the Rochester, MN. Mayo Clinic a couple of months ago but had to get a local GI doctor for long-term med treatment & monitoring. Had tried Budesonide, Prednisone & Imuran, none of which offered much help but many serious side-effects. Still tapering Prednisone though.
I had to call the Mayo doctor because my local GI doctor said with regards several things "she was just guessing" and that they do not have a lot of experience in IBD. This even though when I made the first appointment was told Crohn's was one of their specialities.
The Mayo Clinic doctor said I need to be on Humira or Remicade. Remicade is off the list because my insurance lists it as not covered by my plan. Humira has to be applied for approval. Because of major complications from the first meds and my condition, they said I need a doctor with heavy experience & knowledge with Crohn's. Further the Mayo suggested some names of good GI doctors but either they are not covered by insurance or appointments are over three months out and they do not think I can wait that long for Humira.
Reading reviews for GI doctors (healthgrades, vitals, etc.) have seen some scary reports from patients. Yes I know you have to take some with a grain of salt and some are fake reviews from the doctors but some have seen with many reviews saying no returned phone calls, won't answer questions, etc. so not sure what I'd be getting from them other than a prescription.
Thank You for any info you can provide.