Can you share some of these news stories with us?I switched to a GI that was open to it. I never took it even though he gave me the prescription. I am uncomfortable with all the compounding pharmacy scares in the news lately.
I got my LDN Rx from from a DO because my GI doctor lied about it being illegal to Rx it. Basically, she was just deflecting because she had no interest in deviating from the "standard of care".My GI has turned me down for LDN, and I am going to pursue getting it through another Dr. If your GI said no, and you got LDN some where else, did you tell your GI? If so, what was the GI's reaction?
Off topic, but what would be our rational from jumping from no meds at all to biologics? The usual route has always been to try immunosuppressives first except if you know you cannot take them or you are a very severe case.Haven't ever been on any meds, and I want to try LDN before biologics! .
Hmmm, I had one surgery (2 feet of smaller intestine removed in 2003) and the first thing my GI did (we discussed that before) after the surgery is start me on aza. For a good reason, surgery is no long term management of Crohn, it's a short term fix.alex - My GI wants me to start Cimzia. He says that because I have had an obstruction that perforated and abccessed and required surgery my Crohn's is considered severe. I did take prednisone when I had the obstruction, in April, but was off of it by the end of June, and had surgery the 5th of July, all last year. I guess I could count the pred, but it was short term and specific to the obstruction. I was not diagnosed until they were able to do a scope in late May last year, although a CT scan in February when I had diverticulitis did indicate that I also had Crohn's. I haven't had any problems since the surgery, so have not started any treatment.