alex - I would just rather try the LDN first, for so many reasons. LDN has been around for 20 -30 years, and used at much higher doses for it's original reason, and virtually NO side effects. I think with the % of symptom improvement and remission in the trials so far, it is worth it over the cost, side effects and fact that it is an injection ( needles and me is a nightmare). I also have some history with family and friends who have been treated with drugs that have bad side effects, and had bad side effects - one of them died. So I am not inclined to jump on the bandwagon of relatively new drugs, with known adverse side effects and the long term use / effects are still to come! It's just a personal choice.
leahsmom - I am glad to hear the LDN is working pretty well, and glad that your GI didn't drop you! I guess that is a possibility.
I am hoping for the trials to go forward, with good results, too. I hope the biotech company that bought the patents to Jill Smith's trials at Penn state really is serious about LDN!