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Draining Seton -- lots of pain normal?

Hi all!

I've been dealing with perianal crohn's the last two years, specifically anal fissures. In the last 6 months though I developed an abscess which led to a fistula. I was put on Imuran & Humira which actually seemed to heal all of my fissures and I was feeling great other than aggravation from the fistula which remained.

As of last week, I had a seton placed to keep the fistula draining but since then I have had a lot of pain again, maybe worse then ever before, with several fissures. I feel like the seton has some type of wire/cord poking out in multiple places that is scraping my sphincter, is this normal? Currently I can barely walk from the pain and yet I read some people having setons and being back to playing sports in just a week.

Really confused, I thought this would be a non-invasive surgery with a quick recovery. I have an appointment in a week with my CRS, but worried I'll get worse. At this point I'm even considering a (possibly temp) colostomy (was offered it once before) in the hopes I could just heal the fistula completely as the surgeon told me I may need to keep this horrid seton in forever. Also, if I did have a colostomy, could they remove the seton in the same surgery?

Thanks so much for any advice!
 
For anyone curious or is having a similar experience I thought I'd post an update below,

Went to see my doctor and they said they could just remove the seton right there in the office, which I had no idea it would be that easy to remove. My pain levels got better after it was removed, but didn't go away completely.

It turns out I had a thrombosed hemorrhoid right below it and the seton was squeezing and poking it. How lucky am I? The funny thing is I haven't strained in a long time. Oh well, I might try a seton again after a few months when I feel like the area has completely calmed down, if it doesn't and I keep having my other issues (repeated fissures) then I may look at a colostomy.

Anyway, for anyone with an abnormally painful seton, just know you can have it removed instantly at the doc's office.
 
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