Haven't heard from the doctor yet. Our son has a follow up EGD coming up to see how he is responding to high dose PPIs for the severe esophageal damage from GERD. Dr. had us do a follow up calprotectin since we still don't know if the ulcers and erosions in small intestine are early Crohn's. This is the first time calprotectin is above Borderline. It was borderline before starting PPIs. It's 149 now, which I know in Crohns world isn't considered that high, but it's high for him. PPIs are known to raise calprotectin, but not as much as his has gone up, even for those on a high dose of PPIs.
Periodic small amounts of blood in stools and some digestion issues stopped thanks to entocort/budesonine and appetite improved, but some issues remain. He is gaining some weight with the addition of nutrition shakes to his normal diet. Lately, he probably teeters between being underweight and being bottom of normal teen BMI range, but it's an effort to keep him gaining. He is done with his course of steroids (finished a few weeks ago) and is just on Bentyl (IBS med) and the PPI. Your thoughts? Any suggestions for questions I should ask?
I am thinking the logical recommendation will be to see if we can decrease his PPI once biopsies come back or even go off them (one doctor said never!) and then re-test the calprotectin then, rather than starting on Crohns meds. However, if this is Crohn's, that might not be ideal/safe. I am hoping the doctor isn't that concerned and if she were, she would have called, but I know they are understaffed and over-worked so she may be very busy.
Periodic small amounts of blood in stools and some digestion issues stopped thanks to entocort/budesonine and appetite improved, but some issues remain. He is gaining some weight with the addition of nutrition shakes to his normal diet. Lately, he probably teeters between being underweight and being bottom of normal teen BMI range, but it's an effort to keep him gaining. He is done with his course of steroids (finished a few weeks ago) and is just on Bentyl (IBS med) and the PPI. Your thoughts? Any suggestions for questions I should ask?
I am thinking the logical recommendation will be to see if we can decrease his PPI once biopsies come back or even go off them (one doctor said never!) and then re-test the calprotectin then, rather than starting on Crohns meds. However, if this is Crohn's, that might not be ideal/safe. I am hoping the doctor isn't that concerned and if she were, she would have called, but I know they are understaffed and over-worked so she may be very busy.
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