Hello everyone.
I was diagnosed Crohn's/Behcet's for more than 25 years and have taken Enbrel, Humira, Remicade and now Simponi with Methotrexate. My scope last Fall showed scarring (this is the first time scarring had been reported). I had been taking between 1-10 MG of prednisone for the last 20 months.
Three weeks ago, while on 1 MG of prednisone, I suddenly developed crippling fatigue and excruciating pain in my shoulders, lower back and thighs. Blood was drawn and my CRP was elevated. My family doctor made an appointment with a rheumatologist and |I have increased my predniosne to 2 MG. (I am sensitive to prednisone and experience itching when the dose is increased).
I take 100 MG/ML of Simponi every 21 days and 1 ML of methotrexate weekly.In the past, there has been speculation about AS, and now PMR. The shoulder pain is nauseating and I can't imagine how I will cope until I see the rheumatologist.
Does anyone have this type of pain with their IBD?
Thanks for reading.
I was diagnosed Crohn's/Behcet's for more than 25 years and have taken Enbrel, Humira, Remicade and now Simponi with Methotrexate. My scope last Fall showed scarring (this is the first time scarring had been reported). I had been taking between 1-10 MG of prednisone for the last 20 months.
Three weeks ago, while on 1 MG of prednisone, I suddenly developed crippling fatigue and excruciating pain in my shoulders, lower back and thighs. Blood was drawn and my CRP was elevated. My family doctor made an appointment with a rheumatologist and |I have increased my predniosne to 2 MG. (I am sensitive to prednisone and experience itching when the dose is increased).
I take 100 MG/ML of Simponi every 21 days and 1 ML of methotrexate weekly.In the past, there has been speculation about AS, and now PMR. The shoulder pain is nauseating and I can't imagine how I will cope until I see the rheumatologist.
Does anyone have this type of pain with their IBD?
Thanks for reading.