Hi everyone!
I have been "sort of" diagnosed with Crohn's since my early 20's. I am 37 now. My first flare put me 40 pounds underweight. Between then and now I have had a positive Ibd bloodtest for Crohn's and ulcers in the stomach, and small intestine with an "inconclusive" areas in my colon.
The current flare up I am in began about 3 months ago. Ihave lost over 50 pounds and have spent two separate weeks in the hospital with fatal potassium levels. NOW, my IBD bloodwork is negative and I have a new GI who doesn't think I have crohn's anymore. So, I have no crohn's medication until he finds definitive proof of crohn's. My insurance won't approve another capsule (which all are appealing) because I have already been diagnosed with crohn's.
In the meantime, I just got out of the hospital after 10 K packs of potassium in 5 days and another 10 pounds down. Any advice for this CD sufferer would be great.
I have been "sort of" diagnosed with Crohn's since my early 20's. I am 37 now. My first flare put me 40 pounds underweight. Between then and now I have had a positive Ibd bloodtest for Crohn's and ulcers in the stomach, and small intestine with an "inconclusive" areas in my colon.
The current flare up I am in began about 3 months ago. Ihave lost over 50 pounds and have spent two separate weeks in the hospital with fatal potassium levels. NOW, my IBD bloodwork is negative and I have a new GI who doesn't think I have crohn's anymore. So, I have no crohn's medication until he finds definitive proof of crohn's. My insurance won't approve another capsule (which all are appealing) because I have already been diagnosed with crohn's.
In the meantime, I just got out of the hospital after 10 K packs of potassium in 5 days and another 10 pounds down. Any advice for this CD sufferer would be great.