Hi all
Diagnosed in feb 12 after about 5 months bad bowel. Been on imuran and mezavant since. Also took 20mg Steriods for first while and reduced it down. Went into remission and doc stopped all Steriods in March. Since then I've had
CMV infection with secondary pneumonia
Fissures
Big flare up
Been in hosp twice. Back on huge doses of steroids IV based for 5 days then down to 40mg a day tapering by 5 mg every week
Big issue is I am exhausted. I am 40 but feel 20 years older. Have 2 small kids ( 3 and 5 months)
Anyone else find the tiredness amazing! Anyone got any great tips for me
Starting on infliximab infusions but only had one and got a UTI so waiting on second
Hope it gives you energy
Thanks in advance for your feedback
Joh
Diagnosed in feb 12 after about 5 months bad bowel. Been on imuran and mezavant since. Also took 20mg Steriods for first while and reduced it down. Went into remission and doc stopped all Steriods in March. Since then I've had
CMV infection with secondary pneumonia
Fissures
Big flare up
Been in hosp twice. Back on huge doses of steroids IV based for 5 days then down to 40mg a day tapering by 5 mg every week
Big issue is I am exhausted. I am 40 but feel 20 years older. Have 2 small kids ( 3 and 5 months)
Anyone else find the tiredness amazing! Anyone got any great tips for me
Starting on infliximab infusions but only had one and got a UTI so waiting on second
Hope it gives you energy
Thanks in advance for your feedback
Joh