What do the docs say when the insist it is IBS? What is their evidence and reasoning that eliminates the possibility of IBD? For six different GIs to dismiss the possibility of IBD means that there must be pretty strong evidence against IBD for it to be so uniformly convincing.
If we understand why they are so convinced we can perhaps think of what additional evidence should be gathered to settle the question.
There was one CT scan done, one Xray the next time I went into the ER (which the doctor said I was 'constipated' from what the Xray was showing) and bloodwork done both times.
I went in three days after experiencing the explosive pain I THOUGHT was appendicitis. They ruled out appendicitis and cancer. The doctor started poking and prodding around my abdomen which made me wince in pain. He then had a nurse catheter my arm and sent me in for a CT scan. Said that section of my abdomen appeared fine, my appendix was "perfectly healthy." He said something absurd like it being due to muscle pain in that area or something.. This is not external pain I'm feeling, it's INTERNAL. I know the difference. I thought it was appendicitis and my appendix had/was beginning to rupture. It felt like a bomb went off inside of me. All I was doing was sitting in my chair at the desk reading something on YouTube and then BOOM!
I sat up so fast and did not feel right.. I must've been white in the face, it was terrifying to experience.
Anyhow, the ER doc said he thought it might be IBS, because apparently the CT scan is the be-all and end-all of diagnostics used to prove or disprove of IBD and the colonoscopy I keep hearing about is just something they like to do for fun. I guess the doctors get all sorts of entertainment from shoving a long winding tube up someone's arse. These guys like (and prefer) to sit in their offices all day playing Candy Crush and not doing medical work.
I know for a FACT this is Crohn's just because of the adverse and VERY serious reaction I had when I took one 200mg Advil for pain I was experiencing. I've done my research on this, IBS sufferers are free to take as much Advil as they desire. Crohn's sufferers are NOT. Not to mention the plethora of other symptoms I'm experiencing that point to this being IBD, and not IBS. And did you know what the doctor tried to prescribe me for pain? CYMBALTA. Not codeine, not Tylenol. Cymbalta, a black box antidepressant which brings with it a myriad of other complications for many people who take it!
I digress. There isn't even so much as a verifiable, scientific method used to test for IBS. In my opinion, I don't think IBS exists. I think it's actually a precursor to what can evolve or develop into Crohn's one day, because I did have pain since about 2012 in my liver area where I described it as feeling like "1000 microscopic needles stabbing into my liver all at once." Someone else described their pain as being like someone shoving a handful of glass through their stomach downwards. Sometimes I still feel that, rarely however. the pain on my lower right side (where my ileococal valve is) is persistent, and chronic.