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Fed up with Crohn's. 2 Miscarriages and never ending diet issues.

B

breelight

My name is Bree. I've come to these forums often but have never posted. I've had Crohn's since I was 19 and have been on Remicade, Imuran, pentasa, Humira, Lialda, and 6MP. Oh and Prednisone :)devil:). I hope to never have to be on Prednisone again, it's the devil. I'm currently 31 years old and had my first miscarriage last year around 8 1/2 weeks, and recently this last month at 5 1/2 weeks. I'm currently on Humira and 6 MP and they have been working fine for the most part but the last 6 months I've been taking Integra because my iron was at about a 10 and now have another colonoscopy scheduled for later this week. Due to the miscarriage my iron has dropped to 8.9 which transfusions start happening at 7 so that sucks. I can't really eat anything currently without having moderate diarrhea without obvious blood but it's mostly intense belly pain right above the belly button. If I don't eat currently, I feel fine, great even because I have more energy which I know is obviously not sustainable. Anyways, I hate writing "about me"s because right now it just sounds like a lot of complaining, but I'm frustrated and just want to be in remission so badly.
 
ronroush7

ronroush7

Maybe you should be tested to see if it should be changed to once a week or if maybe you have built up antibodies. Ask your doctor.
 
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