Hi
I have Crohn's for 15 years and stoma (Ileostomy) for 3 and still could not manage several things. first let me give you few details about my stoma:
1. I use mostly Holisters product (Bag, wafer, rings)
2. open bags
3. I always put the low end of the bag folded and in my underwear rubber and than tightened with my jeans. to cover the stoma up I use "Comfizz" Waistband.
4. I never sleep on my stomach and try to sleep on the same side.
The problems:
1. When the stoma get filled I have to put out the stoma from my underwear because I am afraid of leak, and I have to manually hold the low end because I don't trust it to hold on. do you have any tricks?
2. I know some people are putting their entire bag in their jeans but I cannot because if the whole bag is in my jeans there is nothing holding the low end of the stoma and if the jeans are tightened then the capacity of the bag decreases dramatically.
3. I wake up every 2.5-3 hours at night to check on my stoma so there is no leakage or something. I had 2 accidents in the first half year and I am afraid it will happen again. do you have any tips for this? I never sleep well since then.
4. I cannot date any girl because I am ashamed of my stoma.
I have zero confidence and not sure how this issue will ever be solved. I cannot sleep with anyone else because I have to wake up every 3 hours with alarm. if any accidents happen when there is someone else so it will be disaster. I really got used to the idea that I am gonna live alone and I am only 28.
5. my stoma sometimes make loud fart noises that cannot be ignored. I cannot explain this in public. my solution: I always wear sweatshirt and a lot of times just pushing my stoma so it silences the sound. the problems: sometimes it is very hot. sometimes I don't push the stoma in time and people hear this sound. I don't buy the argument to make fun of it because I am super embarrassed from this. any solutions? any accessories that will now bold the stoma? my goal: so nobody will know about the stoma.
I think thats it for now
Thank you very much
I have Crohn's for 15 years and stoma (Ileostomy) for 3 and still could not manage several things. first let me give you few details about my stoma:
1. I use mostly Holisters product (Bag, wafer, rings)
2. open bags
3. I always put the low end of the bag folded and in my underwear rubber and than tightened with my jeans. to cover the stoma up I use "Comfizz" Waistband.
4. I never sleep on my stomach and try to sleep on the same side.
The problems:
1. When the stoma get filled I have to put out the stoma from my underwear because I am afraid of leak, and I have to manually hold the low end because I don't trust it to hold on. do you have any tricks?
2. I know some people are putting their entire bag in their jeans but I cannot because if the whole bag is in my jeans there is nothing holding the low end of the stoma and if the jeans are tightened then the capacity of the bag decreases dramatically.
3. I wake up every 2.5-3 hours at night to check on my stoma so there is no leakage or something. I had 2 accidents in the first half year and I am afraid it will happen again. do you have any tips for this? I never sleep well since then.
4. I cannot date any girl because I am ashamed of my stoma.
I have zero confidence and not sure how this issue will ever be solved. I cannot sleep with anyone else because I have to wake up every 3 hours with alarm. if any accidents happen when there is someone else so it will be disaster. I really got used to the idea that I am gonna live alone and I am only 28.
5. my stoma sometimes make loud fart noises that cannot be ignored. I cannot explain this in public. my solution: I always wear sweatshirt and a lot of times just pushing my stoma so it silences the sound. the problems: sometimes it is very hot. sometimes I don't push the stoma in time and people hear this sound. I don't buy the argument to make fun of it because I am super embarrassed from this. any solutions? any accessories that will now bold the stoma? my goal: so nobody will know about the stoma.
I think thats it for now
Thank you very much
