Hello my name is Abbie, I am 17 years old. I have had a very uneventful past year. It first started off growing up I always had stomach aches growing up that would come and go. I couldn't burp either, It would stay in my throat and I would sound like a frog! My twin sister always made fun of me and at the time it was funny because it didn't hurt. My eighth grade year I was 5'5 and weight 155 pounds. I was not overweight just a bit chunky. My freshman year of high school is when things started to go down hill. I was always tired, and my stomach would always hurt. I would resort to not eating because it would hurt so bad and I couldn't just stay home from school all the time. My sophomore year of high school started and I began losing weight. I was still eating even though my stomach hurt, I decided not eating wouldn't get me anywhere. I played volleyball, basketball, track and softball growing up and I eventually quit all of these as I just did not have the energy for them. In a year I eventually lost 45 pounds and I am down to 110 as of right and i'm 5'5. That was by the middle of my junior year last year. But before my junior year started I was finally seeing the doctor about my problems. I had a PH acid level test done where I had a NG tube down my nose for a day measuring my acid levels. The results came back and the doctor said my acid levels were dangerously high so he decided to have the Nissen Fundoplication surgery done. I was only 16. He then found a hernia in my esophagus and it was eroded. A week following the surgery I was back at the hospital and was told I have pancreatitis.The Doctors were so confused as to why a 16 year old girl had pancreatitis. I wouldn't go away, my amylase and lipase levels were in the thousands. I didn't eat and they thought people were bringing me in food secretly! The eventually let me go home when my levels had gone down a little bit but they still don't know why to this day why i had. I have never drank and even if I did you need years of alcohol use to achieve pancreatitis. They said it couldn't been from my surgery the surgeon was not even close to my pancreas. My symptoms never got better and I had a HIDA scan on February 6th on my 17th birthday. I had a bile duct blockage. I had my gallbladder removed and the surgeon then realized it was covered in adhesions and was extremely inflamed even though none of that showed up on my tests. He said this had obviously gone on for a while. Hoping my life would be getting better I finished junior year but nothing ever got better. I couldn't gain weight and I was having diarrhia 7-10 times a day. I then started to have horrible chest and back pain just like with the pancreatitis and was admitted to the hospital. I had an endoscopy there during my stay and they said my esophagus and stomach were covered in ulcers. Biopsies came back negative for h.pylori bacteria. My regular physican doctor finally able to get me into an adult GI doctor because i was underage it was hard to find one that would accept me. As soon as this GI doctor read my past he knew something was wrong and he told me my clock was ticking. I had blood tests and they came back negative for Crohn's. He said that did not mean anything as he has many patients whos blood tests always come back negative but have ended up needing emergency surgery as their crohn's was that bad. He decided to do a colonoscopy and he went in and said my small intestine looked like chewed up dog food. He was sure it was crohn's. Biopsies came back and he diagnosed me. I started entocort and Liadla and they did absolutely nothing, So then we tried prednisone. I am on it now and it's honestly doing nothing. I can't tell one difference whatsoever other than the negative side effects. The GI doctor is reluctant to put me on Humira or Remicade because I am underage and he normally only helps older people and he doesn't feel comfortable treating me with these strong medications.He feels as if it's something other than Crohn's also. He is now weening me off the prednisone because it's doing nothing. I have been to the ER three times in the past month, the first two times they wanted to admit me but I really didn't want to be in the hospital anymore. I went home and really eventually regretted it. I went again 2 days and the Doctor looked at me like i was a druggy. He wouldn't give me any pain meds he gave me pill benadryl and sent me home. I was so upset, I am 17 year old girl, straight A student despite my spotty attendance, I even attend college classes at the same time and recieve the highest grades in my class... I just want to feel better and with everything in the past year this doctor downright rejected me. He was resident. I was so upset. My mom called my GI doctor and he wants me to get a second opinion by a Crohn's specialist at Barnes Jewish hospital. He won't put me on any other medicine to help me. I feel like he is pushing away but at the same time he just doesn't want me on strong meds when he doesn't deal with underage patients. What is your guys's opinions on this? I am at the end of my rope. I want to be a gastroenterologist when I grow up and I am so afraid my crohn's is gonna stand in my way in college. Help me! 
