I would settle for a doctor who has an interest in learning how to treat it.
In 2008, I became ill with what seemed to be a stomach bug (nausea, vomiting, diarrhea, severe cramping), but it didn't go away. I lost 35 lbs., had a bunch of scopes and other tests which were normal, diarrhea increased to up to 10x per day. I developed debilitating fatigue. At this point, the diarrhea is mostly controlled with cholestyramine, but I still deal with abdominal pain, nausea, stomach cramps and intolerance to many, many foods. And unrelenting fatigue. I had my most recent colonoscopy this spring after I ended up in the ER with severe cramps, diarrhea, bleeding and dehydration. The scope (one month post-ER incident) was normal, with the increased mast cells the only abnormality (well, and a hyperplastic polyp and hemorrhoids).