Well I had my first infusion of Remicade yesterday. Pretty uneventful. I had some tingling in my lips so the gave me some benadryl. Looking forward to my next dose.
Haha, I reread your question. I had someone pick me up. I also took my iPod. :ylol2:Thanks for the advice! I'll definitely make sure I'm well hydrated. Hopefully I don't have a reaction, I haven't been exposed to very medications but I don't think I'm the highly allergic type. Did you bring someone with you?
Hi Evie! Yes I've been reading up on a lot of people's successes with it as well, of course it doesn't agree with or work for everyone, but I think it's worth a shot if that's what your doctor is suggesting. I am getting my first infusion tomorrow and am excited!The nurses I see have talked to me about changing me from humira to infliximab and I am really confused. They originally gave me a choice and I chose humira because I could do it myself quickly at home. I live on my own with my daughter and have no family around to help me so staying in hospital all day and then having to take 2 buses back home afterwards doesn't fill me with excitement. They told me humira would work best in my situation but now they're telling me that infliximab will be best but I don't know why. I'm reading all about it where I can but it doesn't sound too bad after reading some of your stories
Glad the infusion was largely uneventful. Why drink too dilute the remicade? Never heard of that.I'll probably be given the benadryl before my next infusion starts.
It took longer than normal this time. They stopped the infusion when they gave me the benadryl. They also keep you around after to make sure there is no delayed reaction. Total time was about 4 hours. The nurse said it will take about 2.5 hours after we get into the grove lol.
One tip - drink lots of fluid the day of the infusion and the day after. This dilutes the remicade concentration in your blood stream.
I hope yours is as uneventful as mine. And brings long remission for you.
I haven't heard of that either - doesn't make any sense either, I could see them wanting you to be hydrated to make getting a line in easier, but I don't think the difference in blood volume would make any difference with dilution....Glad the infusion was largely uneventful. Why drink too dilute the remicade? Never heard of that.