Hi,
After a few days of reading through posts on these forums, I have decided to introduce myself. I am here because I need the support from those who understand what I am going through (and also to vent :shifty-t.
Background:
pains began six months ago. Diagnosed two months ago, via colonoscopy and CT, the day after my 22nd birthday. I have an abscess (lower-right), bleeding, perforation, infection, and swollen everything.
A week in hospital, 5 weeks on a most revolting diet of “Alitraq” (anyone use this?), with the goal of avoiding surgery. After five weeks, things seemed to improve greatly. But sometime after the doctor said, “okey, another two weeks of Alitraq, at least,” I broke down, switched into a half-liquid, half-low-residue diet. Immediately got worse. Now doctor says it is time for surgery.
Present day:
Do I have surgery? “We need to do everything in our power to avoid surgery.”
Okey, so how do I avoid surgery? “Go back on Alitraq.”
But how can I bring myself to restart this diet again? After five weeks on Alitraq the problem still wasn’t fixed.
Any other options? "Maybe."
I feel that I am in a lose-lose-lose situation.
I’m still learning what is considered a “basic flare up” or a “serious flare up”, so I don’t know where my situation lands on the scale of things…I just think that this “initiation” to Crohn’s-colitis has been...extra sucky.
On the whole I feel crummy. Barely eating. Don't know who to talk to. This food situation is driving me nuts. I don’t know how to deal with this ‘no healthy food’ situation. I have always been super healthy – salads, fruits, veggies…more than anything right now I could go for a tomato or an apple or a peach. (And it doesn’t help when some people care to point out: “crazy, isn’t it, that you have this disease…considering how health-conscious you are.” Well, great. Just great.)
I suppose just that I am typing this means that I am feeling a bit better (given that I've barely left my bed in a week), so that's a start :ysmile: I'm just frustrated. I'm supposed to be on a massive world travel trip right now. Instead I'm making daily rounds to doctors and when I get home I just want to sleep.
Thoughts? Thanks for reading. I think that was super mopey
After a few days of reading through posts on these forums, I have decided to introduce myself. I am here because I need the support from those who understand what I am going through (and also to vent :shifty-t.
Background:
pains began six months ago. Diagnosed two months ago, via colonoscopy and CT, the day after my 22nd birthday. I have an abscess (lower-right), bleeding, perforation, infection, and swollen everything.
A week in hospital, 5 weeks on a most revolting diet of “Alitraq” (anyone use this?), with the goal of avoiding surgery. After five weeks, things seemed to improve greatly. But sometime after the doctor said, “okey, another two weeks of Alitraq, at least,” I broke down, switched into a half-liquid, half-low-residue diet. Immediately got worse. Now doctor says it is time for surgery.
Present day:
Do I have surgery? “We need to do everything in our power to avoid surgery.”
Okey, so how do I avoid surgery? “Go back on Alitraq.”
But how can I bring myself to restart this diet again? After five weeks on Alitraq the problem still wasn’t fixed.
Any other options? "Maybe."
I feel that I am in a lose-lose-lose situation.
I’m still learning what is considered a “basic flare up” or a “serious flare up”, so I don’t know where my situation lands on the scale of things…I just think that this “initiation” to Crohn’s-colitis has been...extra sucky.
On the whole I feel crummy. Barely eating. Don't know who to talk to. This food situation is driving me nuts. I don’t know how to deal with this ‘no healthy food’ situation. I have always been super healthy – salads, fruits, veggies…more than anything right now I could go for a tomato or an apple or a peach. (And it doesn’t help when some people care to point out: “crazy, isn’t it, that you have this disease…considering how health-conscious you are.” Well, great. Just great.)
I suppose just that I am typing this means that I am feeling a bit better (given that I've barely left my bed in a week), so that's a start :ysmile: I'm just frustrated. I'm supposed to be on a massive world travel trip right now. Instead I'm making daily rounds to doctors and when I get home I just want to sleep.
Thoughts? Thanks for reading. I think that was super mopey