How did you find out she has SIBO?Yep! Very useful for IBS but not proven in IBD. One of my daughters did try it but it was to treat SIBO. It didn’t work for her but I think more because her SIBO was caused by her Crohn’s and without fixing her Crohn’s her SIBO was bound to persist.
I read that een can cause SIBO. How do we try to minimize the chance of that happening?Symptoms are the same as IBS and IBD so it’s hard to flush out what is causing what especially when you are in a Crohn’s flare. Her ileocecal valve is stuck open. That was found on her last scope.
Little penguin mentioned in another thread that one potential side effect of een is sibo hence my question.Never heard of anyone getting SIBO from EEN and I have been on here for 12 years and seen A LOT of kids do EEN. ASK THE RD. maybe he/she has some experience with that. Who are you using btw? If you decide on EEN not much you can do it anyway. It isn’t like one formula would be less likely etc. If you have uncontrolled disease that can cause SIBO also, so my bets would be on do whatever it takes to get into remission and take it from there.
Is optimizing Humira still an option? Steroids?
Its kinda weird actually. The EEN convo was with our dietitian. I'll have to ask the doc tomo to order tests.So did the GI order EEN? I am surprised they are willing to wait this long to start. Whenever my girls were so inflamed that they had to go on EEN it was a next day order. No waiting. I am getting very wary of your doc. You need to know what those levels are. Do you have mychart? It would be listed in there under test results.
Actually it was me that consistently brought up the weight loss. Then our #4 doc wrote in his opinion that additional nutritional drinks should be used then our #2 gave us some Kate Farms samples. From there I scheduled an appt with our dietitian and she recommended PediaSure and against Kate Farms and asked me to choose a brand. I was the one who wanted his weight loss to be addressed and everyone else then followed along. It's been very confusing that's why I am on this forum so much.Oh! That is weird. How did the dietician bring it up? On what basis did she think he should do this? It is generally something ordered by the GI as it is a medical treatment and treating the disease doesn’t fall under the RD’s realm.
I must be getting old. I thought he had calpro and Humira levels tests done recently or at least had an open order for them.