Sorry, I was tired when I was writing. I should have said UC to Crohn's.When you say IBD do you mean IBS as IBD is inflammatory bowel disease so either crohns or UC? I have both so if you can clarify I'll try & give as much help as I can
Sorry, I was tired when I was writing. I should have said UC to Crohn's.
Thank you for the advice.
Sending you support.I have no specific questions. I've had what is now Crohn's from age 11. I am now 37. I had a Toxic Megacolon when I was 19, I guess that was my first serious flare. I was left with a temporary Ileostomy in the hope this would be turned into a J-Pouch. Even though I was sent to the work leading St.Marks I was still incorrectly diagnosed with UC and had a pouch created. I knew there was something wrong but I trusted the Surgeons. The moment I had the final operation it all went to hell and I almost died. After 4.5 months I was released weighing 6.5 stone.
I know have a permanent Ileostomy and Crohn's. I am in pain everyday and take strong painkillers. The Biologics do not appear to be working and I am unable to walk far without supervision.
It was the loss of hope that I resent most deeply. The hope that I would be able to hold down a career and be financially secure. All of that has now gone. I don't know what the future holds but I just want to hold onto what little quality of life I do have. It is difficult to explain the relentless cruelty of this disease. At least on here people understand.
I have no specific questions. I've had what is now Crohn's from age 11. I am now 37. I had a Toxic Megacolon when I was 19, I guess that was my first serious flare. I was left with a temporary Ileostomy in the hope this would be turned into a J-Pouch. Even though I was sent to the work leading St.Marks I was still incorrectly diagnosed with UC and had a pouch created. I knew there was something wrong but I trusted the Surgeons. The moment I had the final operation it all went to hell and I almost died. After 4.5 months I was released weighing 6.5 stone.
I know have a permanent Ileostomy and Crohn's. I am in pain everyday and take strong painkillers. The Biologics do not appear to be working and I am unable to walk far without supervision.
It was the loss of hope that I resent most deeply. The hope that I would be able to hold down a career and be financially secure. All of that has now gone. I don't know what the future holds but I just want to hold onto what little quality of life I do have. It is difficult to explain the relentless cruelty of this disease. At least on here people understand.