So the story continues...
I've been itching for over a year. The first symptoms hit me in September 2010 (3 months after delivering my baby boy). It started in my genital area (thought it was something else...treated for everything). Then my scalp started itching (tried to treat that too). Next my arms, then legs then back all started itching....bad! I mean wake up in the middle of the night itching bad.
I've been to so many doctors (several in urgent care, then PCP, then Derm) and I've stumped all of them. The only thing that offered any relief was 40mg of prednisone (and we all know how awful that is!) My GI thinks that it is due to the biologics. So after 2 1/2 great years on Humira I reluctantly made the switch to Remicade. I've been on it for 2 1/2 months now and the itching hasn't stopped. I just got a call from my GI again today (she is amazing!) and now thinks that because it hasn't stopped that it might just be biologics in general. So now, she wants to to stop the Remicade and start 6MP. (I think I've been trying to stay away from 6MP for 2-6 years now).
I'm just so frustrated and worried and don't even know what to think. I'm worried I'm going to flare (Entocort seems to be the only thing keeping me from an all out flair right now). I'm not excited about having to take another new medication and especially something that I have to remember to take every day. I'm worried I'm not going to feel as good as the good times on Humira. Can I just decide to quit? I don't want to have Crohn's anymore. I'm done. I'm good - I don't need to experience all of the lovely surprises and awful sickness and pain anymore. This all just makes me so sad.
I've been itching for over a year. The first symptoms hit me in September 2010 (3 months after delivering my baby boy). It started in my genital area (thought it was something else...treated for everything). Then my scalp started itching (tried to treat that too). Next my arms, then legs then back all started itching....bad! I mean wake up in the middle of the night itching bad.
I've been to so many doctors (several in urgent care, then PCP, then Derm) and I've stumped all of them. The only thing that offered any relief was 40mg of prednisone (and we all know how awful that is!) My GI thinks that it is due to the biologics. So after 2 1/2 great years on Humira I reluctantly made the switch to Remicade. I've been on it for 2 1/2 months now and the itching hasn't stopped. I just got a call from my GI again today (she is amazing!) and now thinks that because it hasn't stopped that it might just be biologics in general. So now, she wants to to stop the Remicade and start 6MP. (I think I've been trying to stay away from 6MP for 2-6 years now).
I'm just so frustrated and worried and don't even know what to think. I'm worried I'm going to flare (Entocort seems to be the only thing keeping me from an all out flair right now). I'm not excited about having to take another new medication and especially something that I have to remember to take every day. I'm worried I'm not going to feel as good as the good times on Humira. Can I just decide to quit? I don't want to have Crohn's anymore. I'm done. I'm good - I don't need to experience all of the lovely surprises and awful sickness and pain anymore. This all just makes me so sad.