Havent been on this forum for ages as things seemed to have settled but how wrong was i!
Brief over view of whats been going on;
Diagnosed with crohns in October 2011, through scopes, initialy tried liquid diet, which was a nightmare, so after 1 week came off and went on steroids, which seemed to help, however late January, he started vomiting at night, which after more scopes and a barrium and mri scan was diagnosed with a blockage, surgery was scheduled for 10 weeks later!! He was due to have the blockage removed, the narrow part of the bowel, along with appendix etc, sorry the correct name escapes me, however when the surgeon went to do the op, no blockage! However as they knew he was having problems he did the marble test! Basically put a marble top to bottom to see if it stopped, and yes it did, 3 times, so he performed strictoplasty on these areas, all keyhole, and initially everything seemed good, that was last May.
However, he has been very unwell for a few months, started before christmas, the tiredness, no able to go to school, full time, and the last 3 weeks a nightmare! Basically, on the toilet, liquied poo, with blood, and once he passed what he decribed as a golf ball! basically a small white poo!! The other thing that concerns us greatly is that when he goes to the loo, which is a couple of times a day, he ends up feeling very faint and dizzy, found him just laying on the lounge floor yesterday, said he ached and he felt like his bones where ice and going to snap!! He is also very pale and gets breathless alot.
We are awaiting blood results and also stool results, rang his nurse this morning and awaiting a call back!
The medication he is currently on his 100mg azathioprine, calcium tables and an A-Z multivitamin!!
The poor lad want to be better so much, been seen by a physciologist who believes he has depression and has regular appointments with her, is it any wonder he feels this way!!
Sorry, rambling away, but had to get it out and would welcome any feed back, suggestions anybody may have.
I believe he is having a major flare up, husband thinks he should be bagged so his bowel could be rested, talk of re doing scopes end of the month!! How much longer until he fades away!!
Currently weighs 38kg, lost 2 kg in the last 3 months!!
Thankyou
Brief over view of whats been going on;
Diagnosed with crohns in October 2011, through scopes, initialy tried liquid diet, which was a nightmare, so after 1 week came off and went on steroids, which seemed to help, however late January, he started vomiting at night, which after more scopes and a barrium and mri scan was diagnosed with a blockage, surgery was scheduled for 10 weeks later!! He was due to have the blockage removed, the narrow part of the bowel, along with appendix etc, sorry the correct name escapes me, however when the surgeon went to do the op, no blockage! However as they knew he was having problems he did the marble test! Basically put a marble top to bottom to see if it stopped, and yes it did, 3 times, so he performed strictoplasty on these areas, all keyhole, and initially everything seemed good, that was last May.
However, he has been very unwell for a few months, started before christmas, the tiredness, no able to go to school, full time, and the last 3 weeks a nightmare! Basically, on the toilet, liquied poo, with blood, and once he passed what he decribed as a golf ball! basically a small white poo!! The other thing that concerns us greatly is that when he goes to the loo, which is a couple of times a day, he ends up feeling very faint and dizzy, found him just laying on the lounge floor yesterday, said he ached and he felt like his bones where ice and going to snap!! He is also very pale and gets breathless alot.
We are awaiting blood results and also stool results, rang his nurse this morning and awaiting a call back!
The medication he is currently on his 100mg azathioprine, calcium tables and an A-Z multivitamin!!
The poor lad want to be better so much, been seen by a physciologist who believes he has depression and has regular appointments with her, is it any wonder he feels this way!!
Sorry, rambling away, but had to get it out and would welcome any feed back, suggestions anybody may have.
I believe he is having a major flare up, husband thinks he should be bagged so his bowel could be rested, talk of re doing scopes end of the month!! How much longer until he fades away!!
Currently weighs 38kg, lost 2 kg in the last 3 months!!
Thankyou