Hey Guys,
I'm so frustrated right now that I feel I'm almost at my breaking point. I've ostensibly been fighting a crohns flare for a year now. The history is such that I started developing symptoms in January of 2007. Thinking I was just battling the flu I put it off until May of 2007 before I started receiving diagnosis and treatment. I feel like right now its never going to get under control so I can just be *normal*, hell I feel like I don't know what normal is anymore.
I spoke to my doctor's nurse today finally after trying to reach him for the last week. I had relayed my concerns last week that after 2 weeks of pred and azathioprine I still was feeling shitty and developing new symptoms. I expected that he'd call me back, turns out after 5 calls to the office I finally get an answer today, he's having me come in tomorrow to discuss options and how to move forward. I've been seeing this guy since August and it seems like we're moving at a snails pace. And I get the feeling he's tired of dealing with me. The last time he ignored my calls to his office I ended up with a small bowel obstruction and a 5 day hospital stay :ymad:
I think we as a group are probably more intune with our bodies and health then "healthy" people so to speak so I get angry when he doesn't respond. I've never raised a call to him without it being something that needed to be addressed.
On top of having to chase my GI down, I've been on disability since June of last year. That has been an absolute effing nightmare. The HR department at my work treats me like a leper because I've raised hell about getting paid. They outsource the disability insurance administration and that company has done nothing but try and make my life hell. Form after form, and they somehow "lost" my apartment number so my checks weren't being delivered to me promptly yet I was blamed for it. My doctor still won't release me back to work so now I'm entering long term disability territory and my wages are being cut back to 60% of my base yearly pay. Because of that I'm having to move out of my place and back in with my parents. I wouldn't complain but I'm 29 years old and its a bit of a hit to the ego to have to be moving back in with your parents at that age you know? What makes that even tougher is that nobody seems to understand that! Its as if I'm losing my independence.
Blah :depressed:
I'm so frustrated right now that I feel I'm almost at my breaking point. I've ostensibly been fighting a crohns flare for a year now. The history is such that I started developing symptoms in January of 2007. Thinking I was just battling the flu I put it off until May of 2007 before I started receiving diagnosis and treatment. I feel like right now its never going to get under control so I can just be *normal*, hell I feel like I don't know what normal is anymore.
I spoke to my doctor's nurse today finally after trying to reach him for the last week. I had relayed my concerns last week that after 2 weeks of pred and azathioprine I still was feeling shitty and developing new symptoms. I expected that he'd call me back, turns out after 5 calls to the office I finally get an answer today, he's having me come in tomorrow to discuss options and how to move forward. I've been seeing this guy since August and it seems like we're moving at a snails pace. And I get the feeling he's tired of dealing with me. The last time he ignored my calls to his office I ended up with a small bowel obstruction and a 5 day hospital stay :ymad:
I think we as a group are probably more intune with our bodies and health then "healthy" people so to speak so I get angry when he doesn't respond. I've never raised a call to him without it being something that needed to be addressed.
On top of having to chase my GI down, I've been on disability since June of last year. That has been an absolute effing nightmare. The HR department at my work treats me like a leper because I've raised hell about getting paid. They outsource the disability insurance administration and that company has done nothing but try and make my life hell. Form after form, and they somehow "lost" my apartment number so my checks weren't being delivered to me promptly yet I was blamed for it. My doctor still won't release me back to work so now I'm entering long term disability territory and my wages are being cut back to 60% of my base yearly pay. Because of that I'm having to move out of my place and back in with my parents. I wouldn't complain but I'm 29 years old and its a bit of a hit to the ego to have to be moving back in with your parents at that age you know? What makes that even tougher is that nobody seems to understand that! Its as if I'm losing my independence.
Blah :depressed: