Hello All,
I apologize in advance for the long post. I was admitted last October for acute pancreatitis and crohn's flare for 7 days. Discharged, had colonoscopy a week later. GI said intestines look clean which he was surprised by because CT looked horrible. Fast forward 2 weeks, admitted again with flare and C-Diff from antibiotics given during the first admission. Sent home, treated for C-Diff. A month later diagnosed with C-Diff again and treated with 3 months worth of pills. Still having pain and referred to surgeon because there was a "string like" section of intestine seen on small bowel imaging. Surgeon said area not found so nothing done. At this time, GI began to question if I really have crohn's. So now I'm dealing pain and them thinking nothing is wrong and basically dismissing me even though 2 other GI diagnosed crohn's. I guess to prove his point of no crohn's, GI decided to do a pill cam endoscopy. The study came back positive for active crohns and pill almost got stuck. This happened in August at which time the GI decided I need to restart therapy ASAP. I was admitted to the hospital again on Thanksgiving night and stayed 6 nights. I have yet to restart therapy. My sed rate was 62 and CRP 15. At discharge sed rate was 15 and CRP 1.2. Still having problems went back to E.R where they treated the pain and said could not send me home with pain meds. Sed rate 29 and CRP 2.5.
At this point I'm at my wits end! I have been dealing with this for year. I am in an active flare without therapy med or pain meds. I'm tired of going to the ER because they are not really helping! I don't know what to do at this point.
I apologize in advance for the long post. I was admitted last October for acute pancreatitis and crohn's flare for 7 days. Discharged, had colonoscopy a week later. GI said intestines look clean which he was surprised by because CT looked horrible. Fast forward 2 weeks, admitted again with flare and C-Diff from antibiotics given during the first admission. Sent home, treated for C-Diff. A month later diagnosed with C-Diff again and treated with 3 months worth of pills. Still having pain and referred to surgeon because there was a "string like" section of intestine seen on small bowel imaging. Surgeon said area not found so nothing done. At this time, GI began to question if I really have crohn's. So now I'm dealing pain and them thinking nothing is wrong and basically dismissing me even though 2 other GI diagnosed crohn's. I guess to prove his point of no crohn's, GI decided to do a pill cam endoscopy. The study came back positive for active crohns and pill almost got stuck. This happened in August at which time the GI decided I need to restart therapy ASAP. I was admitted to the hospital again on Thanksgiving night and stayed 6 nights. I have yet to restart therapy. My sed rate was 62 and CRP 15. At discharge sed rate was 15 and CRP 1.2. Still having problems went back to E.R where they treated the pain and said could not send me home with pain meds. Sed rate 29 and CRP 2.5.
At this point I'm at my wits end! I have been dealing with this for year. I am in an active flare without therapy med or pain meds. I'm tired of going to the ER because they are not really helping! I don't know what to do at this point.
