Great news, I saw my new 'public hospital' GI Specialist yesterday, and are scheduled to begin a raft of diagnostic tests, including Pill Cam, endoscopies and laparascopic biopsies of small bowel. In NZ we have a totally free public health-care system, and pretty much all of the 'private' specialists are also part of our public health system. I can't afford to go private, as each appointment is $330, and a Pill Cam around $4,000, with colonoscopies around $3,500, but can be done for free through the public hospital, although it takes a bit longer to get the procedure, than going private. My last 'flare' lasted over 20 years since my Nissen Fundoplication in 1995, and only been in remission for the last 9 months, but having started on 65mg Pred, and not able to get below 30mg, Prednisone is taking a toll on my body, seizures (around 5 each day) are starting to be quite annoying :0). It's been an amazing last 9 months, from day 3 of starting Pred, I've been pretty much symptom free, but i knew it wouldn't last. Hopefully at the end of the tests and diagnostics (that my GI Specialist said could last up to 2 years), I will have a diagnosis and less intrusive medication to control it. The challenge is that the Docs do not know what I have, and have previously put me in the 'too hard' basket, as they don't have the funding $$ or time to invest in diagnosing me, but I think my persistence has paid off. I'm about to get very sick - as I need to be in full flare for all the tests - but hopefully it will be worth it. When I reduce Prednisone, I expect to be back on around 35 Loperamide per day, as well as as much Buscopan, Antinause, and Ceodine as I can, as well as 150mg Amytript and Quetapine :0) I'm actually quite anxious, as my Dr said he is going to be aggressive in my diagnosis, and wants to get inside to 'cut and chop' until he finds the cause. I know it sounds drastic, but after more than 20 years in misery, I will do anything, and will not go back to being that sick again, and have given him full permission to do so :0)
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