Going to cottage

[Abby]

I have been in a flare up for years, and I have to say where I am right now is about the worse I have ever been. I have been having accidents and I am non stop in the bathroom.

What makes it terrible is it's the beginning of summer, which means camping season, and a friend of my boyfriends is coming down to visit for the first time in 5 years! We (friends, and girlfriends) were all supposed to go to the cottage next weekend.

I'm not sure if I can go, and it made me really upset last night when I said something, and very casually my boyfriend replies "That's okay, I can go without you"

I realize my disease should not be the reason my boyfriend cannot have fun, but it hurt to hear he was just fine if I can't go, as though he didn't care. I'm really upset for a few different reasons... the fact that their bathroom is inside and not soundproof for one...

 

[deb123]

Abby,

I dont know what meds you are on, but they dont sound as though they are working for you. Get back to your GI Doctor pronto. Its bad enough that we have this disease, but it doesnt mean we have to give up on living a happy productive life. Granted we all get laid low with flares, but from what you have said you are almost a prisoner.

As for your boyfriend saying that he is fine to go without you, he probably didnt mean it to sound so harsh. I know my partner can say some pretty unsympathetic things at times, but when i get angry and tell him how im feeling, he is usually shocked that i have misunderstood him, and its all fine.
I know that when i am unwell, the slightest thing comes as a blow - when im well i would shrug it off!
Please get back to your Doctor, and get well, and go to the Cottage
Lots of best wishes to you
Deb.

 

[Abby]

I have tried every medication on the market, and most have made me worse or hospitalized me for a different reason. Even prednisone didn't help after the third time they prescribed it.

I am now just starting Humira and after that it is medical trials or surgery. I am finding it hard to be positive, and it is taking a toll on my life.

 

[deb123]

Goodness, you really are having a hard time, and getting no relief what so ever, i cant imagine how it must be for you. Every medication i have had has worked to a certain degree, and surgery put me in remission for nearly 7 years.

I hope the Humira works for you. But please keep going with it, i know there is no cure, but there are treatments to give you some sort of quality of life, even if they work for a short time.

My very best wishes are sent to you.

Deb.