My disease has always been in my small bowel throughout my jejunum and in my ileum. I've never had any symptoms of it being any further down, but beginning in December when I called my GI before Christmas, desperate, I had throbbing rectal pain. No bleeding with the D, though, so when he said I wasn't in a flare even though I had this pain, fatigue, constant D, and red, swollen joints, I didn't press it. Now I wonder if the rectal pain that's plagued me since December was this fistula or more forming or evidence of disease.
Thanks, Aloe, for the advice to see a Crohn's specialist. I saw one in 2011 and had an IBD surgeon. They are 4 hours away from me and not fully covered by insurance so I had to pay over 10 thousand dollars for the experience before insurance kicked in. Now that I'm not working, I can't afford it.