I like to come back and post as I think it is helpful for new people to the site. I know anything can change at any moment, but celebrating the good when I can.
Refresher is that 11yo was diagnosed with Indeterminate Colitis/Celiac this past October. At diagnosis her Fecal Calpro was 178, in December it was 68, and the results just loaded on the portal...it is 19! Her lab has normal of 0-50. She was 65lbs at diagnois and weighed 74lbs yesterday! She is currently taking Lialda and a GF diet for the Celiac along with 2 Boost Plus (360 calories each) shakes a day. She had a bunch of blood tests done too but those are not back yet.
I have been stressed out about some knee pain she is having. I plan to talk to the Doctor about that at our upcoming appointment. I have no idea if it is IBD related, normal kid issue or dance causing.
Anyway, thank you all for your continued support, this site has been invaluable to me.
Refresher is that 11yo was diagnosed with Indeterminate Colitis/Celiac this past October. At diagnosis her Fecal Calpro was 178, in December it was 68, and the results just loaded on the portal...it is 19! Her lab has normal of 0-50. She was 65lbs at diagnois and weighed 74lbs yesterday! She is currently taking Lialda and a GF diet for the Celiac along with 2 Boost Plus (360 calories each) shakes a day. She had a bunch of blood tests done too but those are not back yet.
I have been stressed out about some knee pain she is having. I plan to talk to the Doctor about that at our upcoming appointment. I have no idea if it is IBD related, normal kid issue or dance causing.
Anyway, thank you all for your continued support, this site has been invaluable to me.