Has anyone had or heard of getting adema in legs from being malnourished after going through a really bad crohns flair? If so how long did it take to build up blood levels for it to go down.
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Has anyone had adema from malnutrition?
- Thread starter crohns4ever
- Start date
- Location
- Southern British Columbia
I had it from too much IV fluid. Same thing in the legs. It went away fairly quickly.
Good to see you back bud,
cmack
Good to see you back bud,
cmack
This is the first time I had this, the doctor said my protein and albumin leave were serious low so on a good note my protein is coming up but my albumin is taking it's sweet time. But they said ounce my albumin came back to normal my legs will go down.
- Location
- Southern British Columbia
I hope so too buddy.
All the best to you during this struggle,
cmack
All the best to you during this struggle,
cmack
Me to buddies I have been through the ringer since November, and still going through this mess.
You can get edema from severe malnourishment - more like from long-term starvation rather than from a Crohn's flare. The swollen bellies you sometimes see on pictures of starving children in famine-stricken areas is an example of the edema of starvation.
The few incidents of swollen legs/feet I've experienced have been due to things such as level of hydration, sitting/standing for a long time, long plane rides, etc. rather than from malnutrition.
The few incidents of swollen legs/feet I've experienced have been due to things such as level of hydration, sitting/standing for a long time, long plane rides, etc. rather than from malnutrition.
Thanks for the information I know it's crazy I went from November until February without eating cause I just ran to the bathroom all the time so about two weeks ago I was so weak I went to the er and you could count every bone in my face and chest. The doctor ran blood work and all my numbers was critical low, protein was like 1.2, ambion level was 0.3, Hgb, 3.5, white count was 1.5. He could not believe I walked into the er, at this time my legs was swollen real big and my ankle was big to. He said it is only seen in third world countries. Then they put a pick line and put me on tpn for a week and a half.
- Location
- Southern British Columbia
4ever,
If you don't eat you you don't poop and If you don't poop you die. Make sure to keep eating. I know the bathroom problems suck but the alternative is much worse. I have had to do a liquid diet sometimes if things are bad, but I make sure to get some calories into me no matter what. Even if it is just a little it is better than nothing. I hope you can gain some weight buddy.
cmack
If you don't eat you you don't poop and If you don't poop you die. Make sure to keep eating. I know the bathroom problems suck but the alternative is much worse. I have had to do a liquid diet sometimes if things are bad, but I make sure to get some calories into me no matter what. Even if it is just a little it is better than nothing. I hope you can gain some weight buddy.
cmack
Yeah buddy most definitely like now I am fixing chicken n rice with ensure enlive. But your right buddy if you don't eat you die, I sure don't won't that bro.
Cmack, I am glad that I meet you here on this form you talked me through some very rough times, and still do. You make good sense. Please keep being the person you are cause I'll always need you around.
I get it...I have no idea why. I sort have linked it to every time I eat gluten...sounds weird...I know.
Really you mean you get edema every time you eat gluten dejavucandace that sucks bro.
- Location
- Southern British Columbia
4ever,
I'm not going anywhere soon. I plan to stick around. I'm happy I could help.
All the best, as always,
cmack
I'm not going anywhere soon. I plan to stick around. I'm happy I could help.
All the best, as always,
cmack
- Location
- Southern British Columbia
Candice,
I feel for you. I hated edema, I felt so deformed and ugly. Thank God it goes away.
Wishing you success,
cmack
I feel for you. I hated edema, I felt so deformed and ugly. Thank God it goes away.
Wishing you success,
cmack
Hell yeah buddy Glad to hear that my friend. Me to I going anywhere either bro, not till the good Lord calls me bro.
- Location
- Southern British Columbia
Amen!
I certainly felt deformed and ugly also, when it was summer and I was wearing compression stockings up to my groin and no one could tell me why this was happening. Plus I have a guilty obsession with high heels and now I can almost never wear them.
And then it struck my face. I just suffered through while they tried to convince me I was on my feet to long....even though I sit at a desk all day long. And to take pills to reduce the swelling. For now though, since I have been avoiding gluten since July to try and improve the Crohns symptoms it seems the swelling has become a lot better. I still have issues of my socks digging into my puffy skin so its still there a bit. When your body turns against you...its a terrible thing. And most doctors just want to treat the symptoms while I would rather find out why and fix that...even if I have to change my food choices.
Yeah it sucks when your body turns against you like that, I thought that could never happen. Hell I wasn't eating cause I didn't won't to go to the bathroom like 30 times a day and the meds my gi gave me was not helping so I decided not to eat from November until early February and I started to eat again and my legs just took off and got so bad that I went to the er and the doctor was surprised I had enough energy to walk, that's crazy bro so I spent about two weeks in there and on TPN for the first week and a half.
- Location
- Southern British Columbia
Candice,
It made my face all fat too. I was embarrassed to go out during that time in my life. Thankfully it got better. I think diet, and depending on the damage to your insides that you suffer plays a huge role.
All the very best my friend,
cmack
It made my face all fat too. I was embarrassed to go out during that time in my life. Thankfully it got better. I think diet, and depending on the damage to your insides that you suffer plays a huge role.
All the very best my friend,
cmack
Cmack,
Yeah luckily it's just in my legs up a little past my knees. I hope my doctor's are right about it will go away in time. Did your legs hurt buddy? Mine does but I still get up and walk around.
Yeah luckily it's just in my legs up a little past my knees. I hope my doctor's are right about it will go away in time. Did your legs hurt buddy? Mine does but I still get up and walk around.
- Location
- Southern British Columbia
4ever,
I blew out both knees skiing steep and deep. They will always hurt. I think you might have dietary things going on.Keep eating. Stick to the schedule. It will help.
Your bud,
cmack
I blew out both knees skiing steep and deep. They will always hurt. I think you might have dietary things going on.Keep eating. Stick to the schedule. It will help.
Your bud,
cmack
I'm going to buddy trust me on that one. I just need to chill out a bit and stop being so darn impatient. I keep telling myself it will go away, but I guess I won't things to happen a little faster you know buddy.
- Location
- Southern British Columbia
One thing at a time. One thing at a time! Just concentrate on nutrition.
- Location
- Southern British Columbia
4ever,
I care about you.
I care about you.
Yelp that's what I am doing now buddy just focus on nutrition and everything else can come later. Yeah buddy I care for you to my friend.
- Location
- Southern British Columbia
4ever,
It will all come to pass in due time. Keep eating healthy and you will mend yourself way faster. You are getting back on the right track. Remember the problems didn't just happen overnight, so it will take some time. Be patient. Hopefully every day will get just a little better than the last one.
I'm in your corner pal,
cmack
It will all come to pass in due time. Keep eating healthy and you will mend yourself way faster. You are getting back on the right track. Remember the problems didn't just happen overnight, so it will take some time. Be patient. Hopefully every day will get just a little better than the last one.
I'm in your corner pal,
cmack
- Location
- Southern British Columbia
4ever,
How are things going dude?
How are things going dude?