I am newly diagnosed but have had stomach problems for more than 4 years: gallbladder problem (removed), told I had inflammation indicative of crohns, then told by another gastro dr. I did not have crohns and was put on a gluten free diet for almost 3 years. I began having problems like diahrrea even on the GF diet. I was having night sweats, fever, swollen joints, anemia, fatigue, horrific diahrrea.Lastly, had excrutiating stomach pain and went to ER in the spring of 2012. Still told by ER dr. that I had inflammation in small intestine (ileitis) but I did not have crohns. My GI dr. did a colonoscopy. I had inflammation and what looked to be a stricture, no ulcers. Was sent home after being told to take prilosec and a fiber pill daily. I knew there was something wrong my GI ignored all my symptoms, high WBC count, pain, etc. To make a long story short, I switched doctors and found a great one who took my symptoms seriously and ran a lower bowel follow through. My blood work did not show the classic markers for crohns, but I definitely have it. I guess what I'm trying to say is even if a dr tells you one thing don't take it as written in stone. You know your body better than anyone and get a second, third, fourth opinion until you find a dr. that will help you. I am angry that I wasted three years listening to a dr. that didn't take my health as seriously as I do. This site has helped me so much because some days I feel I can handle this disease and some days I get really down about it and how it has affected my life and how it will affect my life in the future. When I read other posts on here, I feel as if someone understands what I am going through and that I am not so alone. I am still in the stage of finding the right meds so I don't know if I will be put on anything stronger than prednisone and pentasa as I am having symptoms since beginning to wean off the pred. Dr. talking about imuran and remicade and I'm not too sure about either one.
Diagnosed June 2012
Pentasa 8 capsules daily
Prednisone 20 mg
Diagnosed June 2012
Pentasa 8 capsules daily
Prednisone 20 mg