Hello All,
I am about to turn 36 this year and I was diagnosed with UC in March 2015 with a colonoscopy. I was prescribed Lialda at the time. After taking the medication for about a month I noticed I was feeling worse and worse. During the time I was taking Lialda I was experiencing debilitating pains in my stomach and I was having bloody diarrhoea and could barely even walk. I took a shot and took myself off the medication. Within 2 days I was back to feeling normal again and feeling healthy and OK.
I stayed away from the medication for some time and I felt fine. I would have an occasional flare up over the next year or so months but nothing too serious.
During the first few weeks or months I was just on smoothies and then I slowly went back to normal food.
During this time the doctor put me on other different mesalamine medication: Delzicol - this had the same effect but the pain and bloody diarrhoea started after about a week. I also tried prednisone for a week days which made me feel even worse...
So I stopped taking this also and stayed off until my next colonoscopy.
In Dec 2016 I went in for another Colonoscopy. This time the doctor said I have crohns disease or possible indeterminate ibd.
I was prescribed Asacol HD in Feb 2017 and these were supposed to be 3 pills a day at different times. My doctor suggested that I start with 1 pill a day for a week and second week take 2 and third week take the full 3 pills.
After I started taking 2 a day and closer to the end of the second week, I started have severe abdominal pain. I decided to stop taking this drug and let my doctor know. Within 2 days I was fine again.
I do have a doctors appointment in Mid March scheduled, but I was thinking of asking my doctor to not take any medications but to see if a dietitian could help me with helping choose foods which cause less inflammation. Or possible even just stick to smoothies for the majority of my diet till the end of the year (when I could have another colonoscopy to see how I am doing), I have also started a turmeric regiment to see if that could help.
The medications do not seem to have helped (and I have asked not to be on anything too aggressive) so I thought I would try a different approach.
This is the first time I have seen forums for IBD so I thought I would join to see if anyone else has any experience with this?
Thanks for reading all!
I am about to turn 36 this year and I was diagnosed with UC in March 2015 with a colonoscopy. I was prescribed Lialda at the time. After taking the medication for about a month I noticed I was feeling worse and worse. During the time I was taking Lialda I was experiencing debilitating pains in my stomach and I was having bloody diarrhoea and could barely even walk. I took a shot and took myself off the medication. Within 2 days I was back to feeling normal again and feeling healthy and OK.
I stayed away from the medication for some time and I felt fine. I would have an occasional flare up over the next year or so months but nothing too serious.
During the first few weeks or months I was just on smoothies and then I slowly went back to normal food.
During this time the doctor put me on other different mesalamine medication: Delzicol - this had the same effect but the pain and bloody diarrhoea started after about a week. I also tried prednisone for a week days which made me feel even worse...
So I stopped taking this also and stayed off until my next colonoscopy.
In Dec 2016 I went in for another Colonoscopy. This time the doctor said I have crohns disease or possible indeterminate ibd.
I was prescribed Asacol HD in Feb 2017 and these were supposed to be 3 pills a day at different times. My doctor suggested that I start with 1 pill a day for a week and second week take 2 and third week take the full 3 pills.
After I started taking 2 a day and closer to the end of the second week, I started have severe abdominal pain. I decided to stop taking this drug and let my doctor know. Within 2 days I was fine again.
I do have a doctors appointment in Mid March scheduled, but I was thinking of asking my doctor to not take any medications but to see if a dietitian could help me with helping choose foods which cause less inflammation. Or possible even just stick to smoothies for the majority of my diet till the end of the year (when I could have another colonoscopy to see how I am doing), I have also started a turmeric regiment to see if that could help.
The medications do not seem to have helped (and I have asked not to be on anything too aggressive) so I thought I would try a different approach.
This is the first time I have seen forums for IBD so I thought I would join to see if anyone else has any experience with this?
Thanks for reading all!