Hello,
My name is Sean and I am 29 years old living in Scotland. I have just registered with this forum. I was diagnosed with Crohn's Disease February 2015 and spent 12 days in hospital. I have had various tests and scopes. I was put on Infliximab but my body fights against it and the effects only last for 3-4 weeks which is a shame because it really worked for that period. I have recently been moved to Humira and I have currently had 3 treatments and due my 4th on Monday 31st. So far the Humira has failed to show any signs that it is working. I now cannot eat solid foods or I suffer with severe stomach pains and vomitting. My blood haemoglobin is low and I am exhausted all the time - i feel like i could easily fall asleep at my desk in work! I have spoken to my doctor recently and she suspects that I will need surgery (not had any surgery yet) soon and we are starting the ball rolling with that while we monitor the Humira. If I am honest I am not completely convinced that my IBD team is great and I do not feel like I get a good service as an outpatient.
My condition and the recent thought of surgery as a reality has started to get to me and I find myself getting upset sometimes. I hope that getting involved with this forum and joining a community where I can talk to others with IBD can help with this.
Thank you for reading the brief version of my story so far and please feel free to reply and talk.
Thanks
Sean
My name is Sean and I am 29 years old living in Scotland. I have just registered with this forum. I was diagnosed with Crohn's Disease February 2015 and spent 12 days in hospital. I have had various tests and scopes. I was put on Infliximab but my body fights against it and the effects only last for 3-4 weeks which is a shame because it really worked for that period. I have recently been moved to Humira and I have currently had 3 treatments and due my 4th on Monday 31st. So far the Humira has failed to show any signs that it is working. I now cannot eat solid foods or I suffer with severe stomach pains and vomitting. My blood haemoglobin is low and I am exhausted all the time - i feel like i could easily fall asleep at my desk in work! I have spoken to my doctor recently and she suspects that I will need surgery (not had any surgery yet) soon and we are starting the ball rolling with that while we monitor the Humira. If I am honest I am not completely convinced that my IBD team is great and I do not feel like I get a good service as an outpatient.
My condition and the recent thought of surgery as a reality has started to get to me and I find myself getting upset sometimes. I hope that getting involved with this forum and joining a community where I can talk to others with IBD can help with this.
Thank you for reading the brief version of my story so far and please feel free to reply and talk.
Thanks
Sean