Hi guys...been recently 90% diagnosed as a Crohn's patient...had to see many docs and hanged many GP practices to find the right GP , been suffering for years and so bad now almost housebound. When I say I'm 90% diagnosed...I haven't seen a Gastroenterologyst yet only a GP or primary care docs for those of you who live i the us but my symptoms are o strongly suggestive of Crohn's she said she was pretty sure the test would comeback positive plus there's a history of IBD in my family. She's going to refer me to a gastroenterologyst after taking some blood tests and put me on a bunch of anti acid and NSAIDs. If they don't improve the debilitating symptoms I'm going on Steroids as all I do all say is sleep, eat tiny amounts, sit, vomit or have an alternation between constipation and diarrhoea. I also get high fevers and sorry...burps that taste like faeces. I have two autoimmune diseases already so that's another pointer plus a connective tissue disease plus asthma, OCD, GAD and complex PTSD with DVT. I'm also on Fluoxetine 60mg, Tranexamic Acid, antihistamines, anti spasmodics, vitamins plus high dosages of C and D and diazepam.
I'm in constant pain and feel constant nausea, I can sleep for 48 hours straight and if I try to 'keep going' I fanit or black out I'm, THAT tired. I've lost a bit of weight as I a only eat small amounts and chew very slowly until it's almost liquid otherwise it comes straight back up. I find baby food easier to digest. Cannot eat raw veg. Painkillers don't work on me AT ALL not even for headaches...think that night be to do with the inflamed bowels not absorbing them properly. Having horrible side effects from the diazepam which I've grown tolerant to so I can take 30mg and be just as alert as I was before I took them.
I've been gastrointestinally challenged since I was a baby Constipated mainly. It flared up more in my teens with abdominal cramps not associated with constipation as I was going fine in that department then. It then went away again by my early 20s then back in my early 30s where I was experiencing diarrhoea/constipation and nausea and gradually got worse and worse. I'm now 39 and it's left me without any sort of quality of life so if I don't improve in a week or two on these meds she's putting me straight on steroids. She's referred me to a Gastroenterologist but the waiting list is three months long and I explained I cant wait that long I'm depressed I can't do anything. It was only by seer fluke that I had a 'flare down' or 'good day (although no day is ever symptom fee) when I saw her otherwise I couldn't have gone. She, therefore, suggested I go privately and save up. I think it's a good idea as I am in higher rate of PIP so could afford to use that to pay for a private gasrto doc. Up until now I've been spending it in street or internet Valium as I got hooked on it via the NHS ( was on it for 23 years) and my old GP surgery who stopped it suddenly then I had fits and felt so awful it was hell on earth...I begged for them to wean me off but they refused so I sought them elsewhere...but now I have them on prescription and I've gone down from 120 to 58mgs.
I'm currently living near Newport South Wales UK, planning to move to Liverpool in the spring (if my meds out me in remission). I'm also dreading a colonoscopy as I have Ehlers Danlos Syndrome and bleed easily so any tiny bump or bruise or nick and I bleed for Wales. I have Sjogrens Syndrome (an autoimmune disease that effects the moisture in my bod)y and the EDS also effects my joints making them very painful. I'm small and underweight but big busted (26 G/GG cup) so get terrible backache. Imagine once I'm in steroids and out weight on I could go up to a J or K cup.
I live alone, am in counselling and want to start a new life as this one sucks. Hoping to make friend son here and share ideas and tips and thoughts and whatever, have a laugh, get reassurance and support and give back in return. I'm a Pagan but of Russian Orthodox decent, have heavy periods, love sci fi horror fantasy, thrillers and old TV shows and music. I cant watch or listen to anything past the 90s although there are some good thrillers from 200 onwards I could recommend if anyone else is into this. I'm an ex journalist (had to give up work due t ill health and i to quantum physics and history and learning about the human body. I also love ZOMBIES and my favourite TV show is In The Flesh although the bloody BBC have axed it so I'm part of an underground campaign to get it back on the screen. I also like reading self help nooks, books on time/space, music from the year dot to 90s (all genres except for rap and reggae) and like tennis. I used to play nut cant any more due to joint pain. Had a WHOPPER of a serve, my strong pint, having long arms due to marfanoid habatis which is technically a deformity meaning the arms and legs of an EDS patent are too long or their height.
I'm single (after much stress, trauma and heartache being engaged to someone I now refer to as Freddie Kruger) but have a guy waiting for me, love kids and hate Xmas. I love Halloween, cream cakes, Harry Potter and Lord Of The Rings (the books not the films) I am a proud Slytherin. I even have a Slytherin/Hogwarts uniform. I also love vintage grange Hill if anyone knows what that is. I like dark comedies and pre 2000 comedies.
I'm bisexual, loving, honest, blunt with a weird sense of humour. I also have alopecia and wear a wig when I go out. When I'm home I don't bother. My head is almost completely bald. Only modern TV series I really like is In The Flesh. But I do quite like Call The Midwife. I also love documentaries especially about history from prehistory to modern. I'm dyslexic and dysypraic. Amazing I managed journalism and came top in Egnlsigh at my cshool. I absolutely HATE where I live and desperate to move. Desperate to put on weight, get better, be with my man, be happy, be a healthy(ish) 39-40 year old.
Very open minded but also very down to earth and practical. Strong psychic and very spiritual. I follow the Arthurian gods and goddesses and will tolerate pagan bashing :voodoo: I also love brains and skulls and want one day to collect them not necaly real brains but animal skulls and fake brains and very interested in the digestive system. was going to become a doctor before I decided to become a journalist. It's funny as my OBGYN said she did the opposite. She's also into Harry Potter which is cool. And she wears green...my favourite colour...what more could you want forma OBGYN?!
Favourite group ever-The Beatles, second Bonn Jovi tied with Extreme. Other bands I like are The Bangles, Heart, Van Halen , Queen and Areosmith. Also love classical music, opera and musicals. Walk with a limp, look like a ill, thin version of Sinead O Connor and hate modern technology like mobile phones. Hate this bloody commuter tbh but it has it's uses. Don't watch TV on TV just catch ups, reruns (streaming ect) and DVDs. Love 50s-79s clothes, don't like modern fashion or current music or celeb gossip. Can sing soprano (light lyric coloratura) and love Mozart. That's enough for now I think. Gonna bore you to death rambling.
I'm in constant pain and feel constant nausea, I can sleep for 48 hours straight and if I try to 'keep going' I fanit or black out I'm, THAT tired. I've lost a bit of weight as I a only eat small amounts and chew very slowly until it's almost liquid otherwise it comes straight back up. I find baby food easier to digest. Cannot eat raw veg. Painkillers don't work on me AT ALL not even for headaches...think that night be to do with the inflamed bowels not absorbing them properly. Having horrible side effects from the diazepam which I've grown tolerant to so I can take 30mg and be just as alert as I was before I took them.
I've been gastrointestinally challenged since I was a baby Constipated mainly. It flared up more in my teens with abdominal cramps not associated with constipation as I was going fine in that department then. It then went away again by my early 20s then back in my early 30s where I was experiencing diarrhoea/constipation and nausea and gradually got worse and worse. I'm now 39 and it's left me without any sort of quality of life so if I don't improve in a week or two on these meds she's putting me straight on steroids. She's referred me to a Gastroenterologist but the waiting list is three months long and I explained I cant wait that long I'm depressed I can't do anything. It was only by seer fluke that I had a 'flare down' or 'good day (although no day is ever symptom fee) when I saw her otherwise I couldn't have gone. She, therefore, suggested I go privately and save up. I think it's a good idea as I am in higher rate of PIP so could afford to use that to pay for a private gasrto doc. Up until now I've been spending it in street or internet Valium as I got hooked on it via the NHS ( was on it for 23 years) and my old GP surgery who stopped it suddenly then I had fits and felt so awful it was hell on earth...I begged for them to wean me off but they refused so I sought them elsewhere...but now I have them on prescription and I've gone down from 120 to 58mgs.
I'm currently living near Newport South Wales UK, planning to move to Liverpool in the spring (if my meds out me in remission). I'm also dreading a colonoscopy as I have Ehlers Danlos Syndrome and bleed easily so any tiny bump or bruise or nick and I bleed for Wales. I have Sjogrens Syndrome (an autoimmune disease that effects the moisture in my bod)y and the EDS also effects my joints making them very painful. I'm small and underweight but big busted (26 G/GG cup) so get terrible backache. Imagine once I'm in steroids and out weight on I could go up to a J or K cup.
I live alone, am in counselling and want to start a new life as this one sucks. Hoping to make friend son here and share ideas and tips and thoughts and whatever, have a laugh, get reassurance and support and give back in return. I'm a Pagan but of Russian Orthodox decent, have heavy periods, love sci fi horror fantasy, thrillers and old TV shows and music. I cant watch or listen to anything past the 90s although there are some good thrillers from 200 onwards I could recommend if anyone else is into this. I'm an ex journalist (had to give up work due t ill health and i to quantum physics and history and learning about the human body. I also love ZOMBIES and my favourite TV show is In The Flesh although the bloody BBC have axed it so I'm part of an underground campaign to get it back on the screen. I also like reading self help nooks, books on time/space, music from the year dot to 90s (all genres except for rap and reggae) and like tennis. I used to play nut cant any more due to joint pain. Had a WHOPPER of a serve, my strong pint, having long arms due to marfanoid habatis which is technically a deformity meaning the arms and legs of an EDS patent are too long or their height.
I'm single (after much stress, trauma and heartache being engaged to someone I now refer to as Freddie Kruger) but have a guy waiting for me, love kids and hate Xmas. I love Halloween, cream cakes, Harry Potter and Lord Of The Rings (the books not the films) I am a proud Slytherin. I even have a Slytherin/Hogwarts uniform. I also love vintage grange Hill if anyone knows what that is. I like dark comedies and pre 2000 comedies.
I'm bisexual, loving, honest, blunt with a weird sense of humour. I also have alopecia and wear a wig when I go out. When I'm home I don't bother. My head is almost completely bald. Only modern TV series I really like is In The Flesh. But I do quite like Call The Midwife. I also love documentaries especially about history from prehistory to modern. I'm dyslexic and dysypraic. Amazing I managed journalism and came top in Egnlsigh at my cshool. I absolutely HATE where I live and desperate to move. Desperate to put on weight, get better, be with my man, be happy, be a healthy(ish) 39-40 year old.
Very open minded but also very down to earth and practical. Strong psychic and very spiritual. I follow the Arthurian gods and goddesses and will tolerate pagan bashing :voodoo: I also love brains and skulls and want one day to collect them not necaly real brains but animal skulls and fake brains and very interested in the digestive system. was going to become a doctor before I decided to become a journalist. It's funny as my OBGYN said she did the opposite. She's also into Harry Potter which is cool. And she wears green...my favourite colour...what more could you want forma OBGYN?!
Favourite group ever-The Beatles, second Bonn Jovi tied with Extreme. Other bands I like are The Bangles, Heart, Van Halen , Queen and Areosmith. Also love classical music, opera and musicals. Walk with a limp, look like a ill, thin version of Sinead O Connor and hate modern technology like mobile phones. Hate this bloody commuter tbh but it has it's uses. Don't watch TV on TV just catch ups, reruns (streaming ect) and DVDs. Love 50s-79s clothes, don't like modern fashion or current music or celeb gossip. Can sing soprano (light lyric coloratura) and love Mozart. That's enough for now I think. Gonna bore you to death rambling.