Hello!
I'm trying to find some support or guidance here...I am new to the site so I apologize in advance! haha
My husband was diagnosed with Ulcerative Colitis for a long time before we were together (I'm guessing around 2004 or so), in 2008 he had a huge flare up-lost roughly 50 pounds and was about on his death bed. They finally came up with the conclusion that is was in his best interest to give him an ostomy bag. I supported him through it all and shortly after surgery he was feeling 100 percent better! But while he was in surgery, they realized he actually did not have Ulcerative Colitis, but a severe case of Crohn's, he was misdiagnosed for roughly 4 years.
Over the last 5 years, he has been doing great! Never had to watch what he ate or anything. Well, about 5 months ago (right around the time we welcomed our son into the world), he started to get sick again. He wasn't passing blood or anything (like he used to), but lost 35 pounds in just a couple weeks. So I finally talked him into seeing a holistic docter (he's not a fan of doctors). He was put on a super strict diet and finally realized he no longer could eat gluten or corn. But although taking these things out of his diet has made it a little easier for him, he still isn't feeling up to par. He can't gain his weight back, has no energy, his back is out all the time, he keeps getting "charlie horses". I'm just stuck...I don't know what else to do for him. I'm just trying to see other peoples stories...or see how the help get through "flare ups".
Thank you so much for your time and sorry it was so long!!
I'm trying to find some support or guidance here...I am new to the site so I apologize in advance! haha
My husband was diagnosed with Ulcerative Colitis for a long time before we were together (I'm guessing around 2004 or so), in 2008 he had a huge flare up-lost roughly 50 pounds and was about on his death bed. They finally came up with the conclusion that is was in his best interest to give him an ostomy bag. I supported him through it all and shortly after surgery he was feeling 100 percent better! But while he was in surgery, they realized he actually did not have Ulcerative Colitis, but a severe case of Crohn's, he was misdiagnosed for roughly 4 years.
Over the last 5 years, he has been doing great! Never had to watch what he ate or anything. Well, about 5 months ago (right around the time we welcomed our son into the world), he started to get sick again. He wasn't passing blood or anything (like he used to), but lost 35 pounds in just a couple weeks. So I finally talked him into seeing a holistic docter (he's not a fan of doctors). He was put on a super strict diet and finally realized he no longer could eat gluten or corn. But although taking these things out of his diet has made it a little easier for him, he still isn't feeling up to par. He can't gain his weight back, has no energy, his back is out all the time, he keeps getting "charlie horses". I'm just stuck...I don't know what else to do for him. I'm just trying to see other peoples stories...or see how the help get through "flare ups".
Thank you so much for your time and sorry it was so long!!