Thanks for having me everyone.
I was diagnosed with ulcerative colitis at 13. I kinda let it go partially due to a schizophrenic mom who couldn't take care of herself let alone me.
Fast forward to my middle 20's. I ended up in the hospital numerous times for what the doctors figured was lupus.At one point I was in ER for inflammation of the ileum. May of 2010 it got really bad so I went to a GI who did the scopes and biopsies. He said I had crohns,the biopsies were considered normal because they showed unclassifiable changes in my bowelife and gave me steroids. I let it go again until 2013 when my mom died suddenly of a brain aneurysm following a stroke. I was without medical coverage so I was seeing someone at urgent care whom said I had an abscess in my lower bowel near rectum. I finally got insurance this past year. A GI doctor following an ER/hospital stay ordered more scopes based on the CT findingscan. The scopes looked good but the GI doctor was smart enough to order the pill cam. He knew his scope was missing something because they don't go up too far. He started me on pentasa, 8 pills a day which made me super sick. I didn't eat for 3 days and ended up back in hospital. Another CT showed problems of colitis. My follow up with GI was crazy. He yelled at me and said because of my CRP and other blood work being so off he couldn't give me anything but oh by the way the pill cam showed bad ulceration in my small bowel just above my ileum. He put me on a 3 month course of Budesonide and wants me to try Pentasa again. He has been saying it was a stomach bug that caused my issues with pentasa before. I see him in a few days. Did anyone else have issues with pentasa? Does budesonide help? I understand ya'll aren't doctors but I am so new to actually getting treatment I just want input. Doc did bring up the chemo drugs too but said I was not a good candidate for them because my blood work came back yucky.
I was diagnosed with ulcerative colitis at 13. I kinda let it go partially due to a schizophrenic mom who couldn't take care of herself let alone me.
Fast forward to my middle 20's. I ended up in the hospital numerous times for what the doctors figured was lupus.At one point I was in ER for inflammation of the ileum. May of 2010 it got really bad so I went to a GI who did the scopes and biopsies. He said I had crohns,the biopsies were considered normal because they showed unclassifiable changes in my bowelife and gave me steroids. I let it go again until 2013 when my mom died suddenly of a brain aneurysm following a stroke. I was without medical coverage so I was seeing someone at urgent care whom said I had an abscess in my lower bowel near rectum. I finally got insurance this past year. A GI doctor following an ER/hospital stay ordered more scopes based on the CT findingscan. The scopes looked good but the GI doctor was smart enough to order the pill cam. He knew his scope was missing something because they don't go up too far. He started me on pentasa, 8 pills a day which made me super sick. I didn't eat for 3 days and ended up back in hospital. Another CT showed problems of colitis. My follow up with GI was crazy. He yelled at me and said because of my CRP and other blood work being so off he couldn't give me anything but oh by the way the pill cam showed bad ulceration in my small bowel just above my ileum. He put me on a 3 month course of Budesonide and wants me to try Pentasa again. He has been saying it was a stomach bug that caused my issues with pentasa before. I see him in a few days. Did anyone else have issues with pentasa? Does budesonide help? I understand ya'll aren't doctors but I am so new to actually getting treatment I just want input. Doc did bring up the chemo drugs too but said I was not a good candidate for them because my blood work came back yucky.