Hey all, I was diagnosed with Crohn's in my early teens - along with a growth hormone deficiency.. oh fun, growth hormone plus steroids (prednisone) and being a teenager all at once. I'm now in my thirties. Tried all kinds of meds, had a bowel re-section about 5 years ago.. helped quite a bit, but now problems creeping back. Had two bowel obstructions this past year, plus a host of side effects because my GI doc thought that a high dose of immuno-suppressives would help, which they didn't. Seeing a naturopath - trying to find the right balance of everything.
Movement has always been healing for me. I am an athlete and a circus artist. Also a musician I am a big believer in humor and art to get through, even though sometimes I just wanna give up and yell and scream and be angry at my body. I'm looking for other movers and sporty/active types out there - or those that wish to be once they can get their symptoms under control.
At any rate, I don't experience tons of "pain" (except for those bowel obstructions) - it's more gas and bloating and the embarrassing and uncomfortable stuff that gets me down. I haven't had a long-term romantic relationship in large part because of what Crohn's does to me, and I'd like to talk to folks about that too.
Have dealt with a fair amount of anxiety since my re-section - I take b12 shots but I think that the anxiety has something to do with the imbalances in my body created by the surgery.
I am trying to stay positive. But it's hard sometimes. I guess that's why I am here. Thanks in advance for the support.
Movement has always been healing for me. I am an athlete and a circus artist. Also a musician I am a big believer in humor and art to get through, even though sometimes I just wanna give up and yell and scream and be angry at my body. I'm looking for other movers and sporty/active types out there - or those that wish to be once they can get their symptoms under control.
At any rate, I don't experience tons of "pain" (except for those bowel obstructions) - it's more gas and bloating and the embarrassing and uncomfortable stuff that gets me down. I haven't had a long-term romantic relationship in large part because of what Crohn's does to me, and I'd like to talk to folks about that too.
Have dealt with a fair amount of anxiety since my re-section - I take b12 shots but I think that the anxiety has something to do with the imbalances in my body created by the surgery.
I am trying to stay positive. But it's hard sometimes. I guess that's why I am here. Thanks in advance for the support.
. I'm sorry you've had such a rough ride, I've only been diagnosed 6 months but already realize how this disease effects my life but I've had no surgeries so can't imagine what you've had to go through. 
